Caregivers' perception of the role of the socio-environment on their extremely preterm child's well-being.

Autor: Emmanuel CJ; University of North Carolina, School of Nursing, Carrington Hall, Campus Box #7460, Chapel Hill, NC 27599-7460, United States of America. Electronic address: emmanc@email.unc.edu., Knafl KA; University of North Carolina, School of Nursing, Carrington Hall, Campus Box #7460, Chapel Hill, NC 27599-7460, United States of America. Electronic address: kknafl@email.unc.edu., Docherty SL; Duke University, School of Nursing, Durham, NC, USA. Electronic address: doche002@mc.duke.edu., Hodges EA; University of North Carolina, School of Nursing, Carrington Hall, Campus Box #7460, Chapel Hill, NC 27599-7460, United States of America. Electronic address: Eric.A.Hodges@unc.edu., Wereszczak JK; University of North Carolina, School of Medicine, 101 Manning Drive, Chapel Hill, NC, USA. Electronic address: jwereszc@med.unc.edu., Rollins JV; University of North Carolina, School of Medicine, 101 Manning Drive, Chapel Hill, NC, USA. Electronic address: julie.rollins@unc.edu., Fry RC; University of North Carolina, Envir. Sciences and Engineering, Gillings School of Public Health, Chapel Hill, NC, USA. Electronic address: rfry@unc.edu., O'Shea TM; University of North Carolina, School of Medicine, 101 Manning Drive, Chapel Hill, NC, USA. Electronic address: moshea52@email.unc.edu., Santos HP Jr; School of Nursing and Health Studies, University of Miami, Coral Gables, FL.
Jazyk: angličtina
Zdroj: Journal of pediatric nursing [J Pediatr Nurs] 2022 Sep-Oct; Vol. 66, pp. 36-43. Date of Electronic Publication: 2022 May 25.
DOI: 10.1016/j.pedn.2022.05.005
Abstrakt: Purpose: The purpose of this qualitative descriptive study was to explore primary caregivers' perception of how social-environmental characteristics, and their own role as primary caregivers, affected their extremely preterm adolescent's well-being.
Methods: Participants were 20 mothers who identified as the primary caregiver of an adolescent born extremely prematurely (<28 weeks gestation) enrolled in the ELGAN cohort study. Data was collected through individual interviews and was analyzed using inductive content analysis.
Results: A total of three themes, and five subthemes, were identified. The two main themes were "familial impact to health and well-being," and "contributors and barriers at the community level." This study described specific familial and community contributors to child and caregiver well-being, including: the importance of advocacy, participating in community activities, and social and familial support networks.
Conclusions: Overall, while there are individual level characteristics that contribute to well-being, a support structure at the family and community level is essential to children born extremely prematurely, and their mother's, well-being.
Practice Implications: Healthcare providers caring for these families should understand that not only are extremely preterm youth affected by prematurity, but caregivers are also deeply impacted. Therefore, it is essential that maternal and family care is emphasized by nurses and healthcare providers.
Competing Interests: Declaration of Competing Interest No declaration of interest to report.
(Copyright © 2022 Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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