Relationship between disease awareness and severity of kidney disease in autosomal dominant polycystic kidney disease patients.

Autor: Dogan E; Department of Internal Medicine, Bozyaka Education and Research Hospital, Izmir Faculty of Medicine, University of Health Science, Izmir, Turkey., Eren N; Department of Nephrology, Faculty of Medicine, Kocaeli University, Izmit, Turkey., Ozcan SG; Department of Internal Medicine, Cerrahpasa Medical Faculty, Istanbul University-Cerrahpasa, Istanbul, Turkey., Altunoren O; Department of Nephrology, Faculty of Medicine, Kahramanmaraş Sütçü İmam University, Kahramanmaraş, Turkey., Gungor O; Department of Nephrology, Faculty of Medicine, Kahramanmaraş Sütçü İmam University, Kahramanmaraş, Turkey., Dheir H; Department of Nephrology, Faculty of Medicine, Sakarya University, Sakarya, Turkey., Tanrisev M; Department of Nephrology, Tepecik Education and Research Hospital, Izmir Faculty of Medicine, University of Health Science, Izmir, Turkey., Kocyigit H; Department of Internal Medicine, Faculty of Medicine, Erciyes University, Kayseri, Turkey., Yıldız A; Department of Nephrology, Faculty of Medicine, Uludag University, Bursa, Turkey., Kocyigit İ; Department of Nephrology, Faculty of Medicine, Erciyes University, Kayseri, Turkey., Seyahi N; Department of Nephrology, Cerrahpasa Medical Faculty, Istanbul University-Cerrahpasa, Istanbul, Turkey., Tatar E; Department of Nephrology, Bozyaka Education and Research Hospital, Izmir Faculty of Medicine, University of Health Science, Izmir, Turkey.
Jazyk: angličtina
Zdroj: Therapeutic apheresis and dialysis : official peer-reviewed journal of the International Society for Apheresis, the Japanese Society for Apheresis, the Japanese Society for Dialysis Therapy [Ther Apher Dial] 2023 Feb; Vol. 27 (1), pp. 117-122. Date of Electronic Publication: 2022 May 10.
DOI: 10.1111/1744-9987.13860
Abstrakt: Introduction: Polycystic kidney disease (PKD) is responsible for 5%-10% of end-stage renal disease. We examined the relationship between renal and extrarenal findings, disease severity, and the level of consciousness of PKD patients.
Methods: Patients were asked to answer the questionnaire about PKD. Disease severity was determined according to estimated glomerular filtration rate, and disease awareness was assessed by adapting the Disease Perception Scale to PKD. Awareness of patients was evaluated comparatively with chronic kidney disease stage, age, region, and symptoms.
Results: One out of five patients does not know that this disease is inherited. Mean awareness scores of the patients decreased significantly with increasing age. Awareness scores were significantly higher in patients with flank pain, hematuria, and urinary tract stones.
Conclusion: Although PKD is the most common hereditary kidney disease, the rate of patients' knowledge on this subject is low. Increased awareness might lead to better treatment in those patients.
(© 2022 International Society for Apheresis and Japanese Society for Apheresis.)
Databáze: MEDLINE
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