Caregiver Insights and Improvement Strategies for Youth with Autism Undergoing Gastrointestinal Endoscopy.

Autor: Kim T; Point Loma Nazarene University, San Diego, CA, USA., Martinez K; San Diego State University/UC San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA, USA. kamartin@health.ucsd.ed.; Child & Adolescent Services Research Center, San Diego, CA, USA. kamartin@health.ucsd.ed., Cruz BL; Department of Pediatrics, University of California San Diego, San Diego, CA, USA., Huang JS; Dissemination and Implementation Science Center, University of California San Diego, La Jolla, CA, USA.; Division of Gastroenterology Hepatology and Nutrition, Rady Children's Hospital, San Diego, CA, USA., Stadnick NA; Child & Adolescent Services Research Center, San Diego, CA, USA.; Dissemination and Implementation Science Center, University of California San Diego, La Jolla, CA, USA.; Department of Psychiatry, University of California San Diego, La Jolla, CA, USA.
Jazyk: angličtina
Zdroj: Journal of autism and developmental disorders [J Autism Dev Disord] 2023 Apr; Vol. 53 (4), pp. 1476-1482. Date of Electronic Publication: 2022 Feb 25.
DOI: 10.1007/s10803-021-05346-5
Abstrakt: Limited guidance is available for families of youth with ASD (YASD) to prepare for invasive medical procedures. This study examined caregiver perspectives regarding YASD's gastrointestinal endoscopy (GE) experience to improve the endoscopy experience for YASD. Thirty-four caregivers of YASD, (M = 9.85 years, SD = 4.6) who underwent GE at Rady Children's Hospital, San Diego between May 2018 and July 2019 (identified via electronic health record) participated in a structured phone interview. Caregivers reported a positive experience due to the procedural team's responsiveness to the needs of YASD and appropriately answering/addressing questions/concerns. Caregivers reported a need for ASD-specific information on how to prepare for GE. Specific recommendations are discussed. Study findings offer strategies to improve the care experience of YASD undergoing GE.
(© 2022. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.)
Databáze: MEDLINE
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