"Her Heart Matters"-Making Visible the Cardiac Pain Experiences of Women with Physical Disabilities and Heart Disease: A Qualitative Study.

Autor:	Parry M; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada., Bjørnnes AK; Institute of Nursing and Health Promotion, Oslo Metropolitan University, Oslo, Norway., Harrington M; Faculty of Kinesiology & Physical Education, University of Toronto, Toronto, Ontario, Canada., Duong M; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada., El Ali S; Faculty of Arts & Science, University of Toronto, Toronto, Ontario, Canada., O'Hara A; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada., Clarke H; Pain Research Unit, University Health Network, Toronto, Ontario, Canada., Cooper L; Woman with Lived Experience, Kitchener, Ontario, Canada., Hart D; Woman With Lived Experience, Milton, Ontario, Canada., Harvey P; Women's College Research Institute, Women's College Hospital, Toronto, Ontario, Canada.; Department of Medicine, Women's College Hospital, Toronto, Ontario, Canada., Lalloo C; Research Institute, The Hospital for Sick Children, Toronto, Ontario, Canada., McFetridge-Durdle J; College of Nursing, Florida State University, Tallahassee, Florida, USA., McGillion MH; School of Nursing, McMaster University, Hamilton, Ontario, Canada., Norris C; Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.; Cardiovascular Health and Stroke Strategic Clinical Network, Alberta Health Services, Edmonton, Alberta, Canada., Pilote L; Department of Medicine, Divisions of Clinical Epidemiology and General Internal Medicine, McGill University, Montreal, Quebec, Canada.; Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada., Price J; Women's College Research Institute, Women's College Hospital, Toronto, Ontario, Canada., Stinson J; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.; Research Institute, The Hospital for Sick Children, Toronto, Ontario, Canada., Watt-Watson J; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
Jazyk:	angličtina
Zdroj:	CJC open [CJC Open] 2021 Oct 20; Vol. 4 (2), pp. 214-222. Date of Electronic Publication: 2021 Oct 20 (Print Publication: 2022).
DOI:	10.1016/j.cjco.2021.09.028
Abstrakt:	Background: Women with physical disabilities are faced with challenges in many aspects of life-education, work, income, relationships, as well as their general health. These women are at a greater risk of developing heart disease. This study aimed to explore the cardiac pain experiences of women with physical disabilities and heart disease within a Canadian healthcare context. Methods: In this qualitative study, 8 women with physical disabilities and heart disease from across Canada were interviewed. They were asked about their pre-, peri-, and post-diagnostic experiences in the Canadian healthcare system. Transcripts of the interviews were analyzed using a hermeneutic phenomenological approach inspired by Ricoeur. Results: Two main themes were uncovered in the analysis of the transcripts, as follows: (i) the diagnostic journey; and (ii) life with cardiac symptoms and a disability. The women indicated that they had experienced difficulties in utilizing the Canadian healthcare system prior to receiving a cardiac diagnosis, including long waitlists, expensive and unreliable transport, issues with accessibility, and dealing with providers' attitudinal barriers regarding disability. Receiving a diagnosis was challenging due to poor relationships with healthcare providers; however, having a same-sex provider seemed essential to receiving adequate care. Self-managing a disability and heart disease had significant physical and psychological impact, which was lightened by financial and social supports, modified lifestyle choices, and self-advocacy. Conclusions: Women with physical disabilities are often forgotten in discussions encompassing equity and inclusion. The participants' experiences offer insight into what changes are needed within the Canadian healthcare system in order to improve outcomes for these women. (© 2021 The Authors.)
Databáze:	MEDLINE
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