Ranking the Importance of Their Own Diseases: A Positioning Analysis in Rheumatic Patients and Their Proxies.

Autor: Barajas-Ochoa A; Department of Medicine, Rutgers New Jersey Medical School, Newark, NJ, USA., Rojero-Gil EK; Unidad de Investigación en Enfermedades Crónico-Degenerativas, Guadalajara, Mexico., Bustamante Montes LP; Universidad Autónoma de Guadalajara, Guadalajara, Mexico., Ramos-Remus C; Unidad de Investigación en Enfermedades Crónico-Degenerativas, Guadalajara, Mexico; Universidad Autónoma de Guadalajara, Guadalajara, Mexico. Electronic address: r_ramos@prodigy.net.mx.
Jazyk: English; Spanish; Castilian
Zdroj: Reumatologia clinica [Reumatol Clin (Engl Ed)] 2021 Sep 10. Date of Electronic Publication: 2021 Sep 10.
DOI: 10.1016/j.reuma.2021.04.014
Abstrakt: Introduction/objective: To assess the positioning that patients with systemic lupus erythematosus (SLE), rheumatoid arthritis (RA), ankylosing spondylitis (AS) and their proxies give to their diseases.
Methods: Subjects completed a self-administered questionnaire to rank 11 diseases from "worst" to "least bad". Then they defined the "worst" disease and ranked 10 diseases from highest to lowest importance from a list including "my rheumatic disease/my relative's disease". The lists of the included diseases represented the mindshare from a sample of healthy adults.
Results: There were 570 respondents (104 SLE, 99 RA, 82 AS, and 285 proxies). Rheumatoid arthritis was considered the third-worst disease (recoded ranking first by 41% of patients and 43% proxies, second by 49% and 44%, and third by 10% and 13%). A disease that kills was the preferred definition for the worst disease. "My disease/my relative's disease" was ranked fourth in importance (first by 41% of patients, second by 38%, and third by 21%). Rankings were not associated with age, schooling, disease duration, or setting.
Discussion and Conclusions: Most respondents ranked their own disease considerably lower than other non-rheumatic conditions.
(Copyright © 2021 Elsevier España, S.L.U. and Sociedad Española de Reumatología y Colegio Mexicano de Reumatología. All rights reserved.)
Databáze: MEDLINE
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