Development of the First Patient-centred Set of Outcomes for Muscle-invasive and Metastatic Bladder Cancer: A Multicentre Initiative.

Autor:	Reesink DJ; Urology Department, St. Antonius Hospital, Utrecht/Nieuwegein, The Netherlands., van de Garde EMW; Clinical Pharmacy Department, St. Antonius Hospital, Utrecht/Nieuwegein, The Netherlands., Somford DM; Urology Department, Canisius Wilhelmina Hospital [CWZ], Nijmegen, The Netherlands., Meijer RP; Urology Department, University Medical Center Utrecht (UMCU), Utrecht, The Netherlands., Los M; Oncology Department, St. Antonius Hospital, Utrecht/Nieuwegein, The Netherlands., Biesma DH; Value Based Healthcare Department, St. Antonius Hospital, Utrecht/Nieuwegein, The Netherlands., Horenblas S; Urology Department, The Netherlands Cancer Institute - Antoni van Leeuwenhoek [NCI-AVL] Hospital, Amsterdam, The Netherlands., van Melick HHE; Urology Department, St. Antonius Hospital, Utrecht/Nieuwegein, The Netherlands., van der Nat PB; Value Based Healthcare Department, St. Antonius Hospital, Utrecht/Nieuwegein, The Netherlands.; Scientific Center for Quality of Healthcare (IQ Healthcare), Radboud UMC, Nijmegen, The Netherlands.
Jazyk:	angličtina
Zdroj:	European urology open science [Eur Urol Open Sci] 2021 Feb 15; Vol. 26, pp. 18-26. Date of Electronic Publication: 2021 Feb 15 (Print Publication: 2021).
DOI:	10.1016/j.euros.2021.01.014
Abstrakt:	Background: To improve and compare outcomes in healthcare, it is necessary to standardise outcome measurements. There are no widely accepted standardised outcome measures reflecting quality of care for bladder cancer (BCa) patients. Objective: The aim of this study was to create a standardised set of outcomes for patients with muscle-invasive or metastatic BCa, using the value-based healthcare principles. Design Setting and Participants: A multidisciplinary working group of 25 healthcare professionals and patient representatives was assembled, to develop the set. Outcome Measurements and Statistical Analysis: We used an online RAND-modified Delphi process to prioritise, discuss, and reach consensus regarding the outcomes, case-mix variables, and treatment factors. Results and Limitations: Recognising the heterogeneity of patients with BCa, the working group defined the scope as patients with muscle-invasive and metastatic BCa. A total of 24 outcomes, including ten patient-reported outcomes, were included in the standard set of outcomes, covering survival, complication rates, recurrence of disease, readmissions after treatment, and quality of life (QoL). Fourteen case-mix variables were included. The EQ-5D and European Organisation for Research and Treatment of Cancer quality of life (EORTC-QLQ) questionnaires were recommended to measure QoL. Conclusions: We developed the first standardised set of patient-centred outcomes for muscle-invasive and metastatic BCa. The sue of this set enables institutions to monitor, compare, and improve the quality of BCa care, on an international level. Patient Summary: Our group of healthcare professionals and patient representatives recommended a standardised set of patient-centred outcomes to be followed during the treatment of patients with muscle-invasive or metastatic bladder cancer, in order to monitor, compare, and improve the quality of care. (© 2021 The Author(s).)
Databáze:	MEDLINE
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