A Qualitative Analysis of Factors Impacting Comprehensive Cleft Lip and Palate Care in Ghana.

Autor:	Sommer CL; Department of Communication Sciences and Disorders, University of Utah, Salt Lake City, UT, USA., Wankier AP; Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA., Obiri-Yeboah S; Multidisciplinary Cleft Clinic, Oral and Maxillofacial Surgery Unit, Komfo Anokye Teaching Hospital, Kumasi, Ghana.; School of Medicine and Dentistry, Kwame Nkrumah University of Science Technology, Kumasi, Ghana., Gyamfi S; Multidisciplinary Cleft Clinic, Oral and Maxillofacial Surgery Unit, Komfo Anokye Teaching Hospital, Kumasi, Ghana.; Social Welfare Office, 259295Komfo Anokye Teaching Hospital, Kumasi, Ghana., Frimpong BA; Multidisciplinary Cleft Clinic, Oral and Maxillofacial Surgery Unit, Komfo Anokye Teaching Hospital, Kumasi, Ghana.; Oral Health Department, 259295Komfo Anokye Teaching Hospital, Kumasi, Ghana., Dickerson T; Pediatrics, 23188Primary Children's Hospital, Salt Lake City, UT, USA.; University of Utah School of Medicine, Global Health Education, University of Utah, Salt Lake City, Utah, USA.
Jazyk:	angličtina
Zdroj:	The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association [Cleft Palate Craniofac J] 2021 Jun; Vol. 58 (6), pp. 746-754. Date of Electronic Publication: 2020 Sep 29.
DOI:	10.1177/1055665620959995
Abstrakt:	Objective: The objective of this study was to examine practices regarding cleft lip and palate (CLP) among medical professionals and caregivers of children with CLP and to identify barriers and facilitators to comprehensive CLP care at a hospital in West Africa. Design: Qualitative methods used consisted of individual semistructured interviews with caregivers of children with CLP and one focus group with CLP team members. Setting: A majority of the interviews took place in the hospital, with some occurring during home visits. The focus group was conducted in the same hospital. Participants: Forty-five caregivers of children with CLP and 1 adult with CLP completed an interview. Additionally, 2 of the caregivers had CLP and completed an interview from their perspective. The focus group consisted of 13 CLP team members from a comprehensive CLP team in Ghana. Interventions: Interviews consisted of semistructured, open-ended questions, and the focus group relied on a discussion guide. Line-by-line coding was used to identify common themes regarding barriers and facilitators to CLP care. Results: Barriers to CLP care that were consistent across caregiver interviews and the focus group were lack of knowledge regarding CLP, stigma and cultural beliefs surrounding CLP, transportation, financial, and feeding/nutrition issues. Barriers to care identified in the interviews and focus group were similar; however, facilitators to care varied greatly between the 2. Conclusions: Two different qualitative methods provided unique perspectives on barriers and facilitators to CLP care. However, patients and caregivers continue to face substantial barriers to obtaining care.
Databáze:	MEDLINE
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