Quality of life of adolescents with cerebral palsy: agreement between self-report and caregiver's report.

Autor:	Ferreira MC; Universidade Federal de Goiás, Faculdade de Medicina, Goiânia, GO, Brazil.; Scholarship holder at the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES), Brazil., Garcia NR; Universidade Federal de Goiás, Faculdade de Medicina, Goiânia, GO, Brazil., Prudente COM; Pontifícia Universidade Católica de Goiás, Escola de Ciências Sociais e da Saúde, Goiânia, GO, Brazil., Ribeiro MFM; Pontifícia Universidade Católica de Goiás, Escola de Ciências Sociais e da Saúde, Goiânia, GO, Brazil.
Jazyk:	English; Portuguese; Spanish; Castilian
Zdroj:	Revista latino-americana de enfermagem [Rev Lat Am Enfermagem] 2020 Jul 01; Vol. 28, pp. e3300. Date of Electronic Publication: 2020 Jul 01 (Print Publication: 2020).
DOI:	10.1590/1518-8345.3928.3300
Abstrakt:	Method: to assess the quality of life (QOL) of adolescents with cerebral palsy (CP) by self-report and by the caregiver's report, and to analyze the agreement between these reports.cross-sectional study conducted with 101 adolescents with CP and 101 caregivers. Both answered the Pediatric Quality of Life Inventory (PedsQL), module 4.0 - Generic (PedsQL 4.0) and module 3.0 - PC (PedsQL 3.0). Agreement between reports was analyzed using the Mann-Whitney test and the intra-class correlation coefficient (ICC) (p<0.05). Results: the lowest scores were in physical health, school activities and fatigue in the self-report. The lowest scores were in physical health and daily activities, in the caregivers' report. Perceptions among adolescents and caregivers differed in physical health, movement and equilibrium, daily and school activities, with a lower score for caregivers in all of them. The agreement between the self-report and the caregivers' report was poor (ICC<0.44) and in both instruments, the caregivers' report was less optimistic. Conclusion: physical health is the most impaired domain of the QOL of adolescents with CP, both in the self-report and in the caregivers' report. However, there is poor agreement between these reports, emphasizing that the use of the caregivers' report should be cautious.
Databáze:	MEDLINE
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