Flexible model for patient engagement: Achieving quality outcomes and building a research agenda for head and neck cancer.

Autor: Iwata AJ; Department of Otolaryngology Head and Neck Surgery, Henry Ford Health System, Detroit, Michigan., Olden HA; Department of Public Health Sciences, Henry Ford Health System, Detroit, Michigan., Kippen KE; Department of Public Health Sciences, Henry Ford Health System, Detroit, Michigan., Swegal WC; Department of Otolaryngology Head and Neck Surgery, Henry Ford Health System, Detroit, Michigan., Johnson CC; Department of Public Health Sciences, Henry Ford Health System, Detroit, Michigan., Chang SS; Department of Otolaryngology Head and Neck Surgery, Henry Ford Health System, Detroit, Michigan.; Department of Public Health Sciences, Henry Ford Health System, Detroit, Michigan.
Jazyk: angličtina
Zdroj: Head & neck [Head Neck] 2019 Apr; Vol. 41 (4), pp. 1087-1093. Date of Electronic Publication: 2019 Jan 08.
DOI: 10.1002/hed.25584
Abstrakt: Background: This article describes the benefits of patient-driven research in the field of head and neck oncology, reviews lessons learned from establishing partnerships with patients and caregivers, and serves as a model for further patient-driven research endeavors.
Methods: Head and neck cancer survivors underwent training including that of effective communication and the basics of research methodology. They then drove the agendas for monthly meetings that included a multidisciplinary team of providers, facilitated by a physician champion (S.S.C.).
Results: The advisors reported concrete areas for improvement of the clinical flow, including the formation of a dental oncology clinic and a post-treatment survivorship clinic. They also refined research topics of interest, such as treatment regret. The advisors have also driven efforts to increase public awareness and have participated in cancer symposiums and local presentations.
Conclusion: Patient-driven research improves the relevance and implementation of head and neck oncology research and clinical processes.
(© 2019 Wiley Periodicals, Inc.)
Databáze: MEDLINE
Externí odkaz: