Therapeutic Patient Education in Cancer Pain Management: from Practice to Research: Proposals and Strategy of the French EFFADOL Program.

Autor: Prevost V; UMR 1086 INSERM « ANTICIPE » and University of Normandy, Caen, France. virginie.prevost@unicaen.fr.; François Baclesse Regional Cancer Center, Caen, France. virginie.prevost@unicaen.fr.; UMR 1086 INSERM « ANTICIPE », Centre Francois Baclesse, Av. du Général Harris, 14076, Caen, Cedex 05, France. virginie.prevost@unicaen.fr., Clarisse B; François Baclesse Regional Cancer Center, Caen, France., Heutte N; François Baclesse Regional Cancer Center, Caen, France.; UNIROUEN, CETAPS EA 3832, University of Normandy, Mont Saint Aignan, France., Leconte A; François Baclesse Regional Cancer Center, Caen, France., Bisson C; Bayeux Hospital, Bayeux, France.; Regional Pain Network for Lower Normandy, Bayeux, France., Bignon R; Regional Pain Network for Lower Normandy, Bayeux, France.; Lisieux Hospital, Lisieux, France., Cauchin S; Regional Pain Network for Lower Normandy, Bayeux, France.; Alençon-Mamers Intercommunal Hospital, Alençon, France., Feuillet M; Regional Pain Network for Lower Normandy, Bayeux, France.; Saint-Lô Hospital, Saint-Lô, France., Gehanne S; Regional Pain Network for Lower Normandy, Bayeux, France.; Saint-Lô Hospital, Saint-Lô, France., Gicquère M; François Baclesse Regional Cancer Center, Caen, France.; Regional Pain Network for Lower Normandy, Bayeux, France., Grach MC; François Baclesse Regional Cancer Center, Caen, France.; Regional Pain Network for Lower Normandy, Bayeux, France., Guillaumé C; Regional Pain Network for Lower Normandy, Bayeux, France.; University Hospital, Caen, France., Le Gal C; Regional Pain Network for Lower Normandy, Bayeux, France.; Argentan Hospital, Argentan, France., Le Garrec J; Regional Pain Network for Lower Normandy, Bayeux, France.; Alençon-Mamers Intercommunal Hospital, Alençon, France., Lecaer F; Regional Pain Network for Lower Normandy, Bayeux, France.; Flers Hospital, Flers, France., Lepleux I; Regional Pain Network for Lower Normandy, Bayeux, France.; Cherbourg Hospital, Cherbourg, France., Millet AL; Regional Pain Network for Lower Normandy, Bayeux, France.; Flers Hospital, Flers, France., Ropartz MC; Regional Pain Network for Lower Normandy, Bayeux, France.; Avranches-Granville Hospital, Granville, France., Roux N; Regional Pain Network for Lower Normandy, Bayeux, France.; University Hospital, Caen, France., Hieng VS; Regional Pain Network for Lower Normandy, Bayeux, France.; Lisieux Hospital, Lisieux, France., Van Delook C; Regional Pain Network for Lower Normandy, Bayeux, France.; Argentan Hospital, Argentan, France., Le Chevalier A; Regional Pain Network for Lower Normandy, Bayeux, France.; Avranches-Granville Hospital, Granville, France., Delorme C; Bayeux Hospital, Bayeux, France.; Regional Pain Network for Lower Normandy, Bayeux, France.
Jazyk: angličtina
Zdroj: Journal of cancer education : the official journal of the American Association for Cancer Education [J Cancer Educ] 2018 Dec; Vol. 33 (6), pp. 1355-1361.
DOI: 10.1007/s13187-017-1258-8
Abstrakt: In the field of cancer pain, therapeutic patient education (TPE) allows patients to develop skills to better manage their pain. In the Lower Normandy region of France, the management of pain is based on networking, thus allowing proximity and accessibility for all concerned. We have thus designed and initiated a broad five-stage research program that includes the following: (1) training for caregivers in TPE; (2) identifying the educational expectations of patients and their relatives with regard to cancer pain; (3) the design of a TPE program; (4) the evaluation of its quality; and (5) the evaluation of its effectiveness by comparative randomization. This article presents this approach and more particularly the research phases (stages 2, 4, 5) for which the objectives, the methodology, and the expected results are justified. Among the key points, particular attention is paid to the evaluation of the educational dimension that provides patients with self-efficacy to participate actively in the management of their pain, their perception of changes in relation to it and its impact. The choice of a specific assessment criterion (subscale 9 of the Brief Pain Inventory) and of the step-wedge design are thus argued. This approach, which is based on a partnership between health care professionals and researchers, aims to demonstrate the benefits provided by TPE to patients in order to enable them to better manage their pain on a daily basis.
Databáze: MEDLINE
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