How will cancer survivors use survivorship care plans?
| Autor: | Kinnane NA; a Australian Cancer Survivorship Centre, a Richard Pratt Legacy , Peter MacCallum Cancer Centre , Melbourne , Victoria , Australia., Piper AJ; a Australian Cancer Survivorship Centre, a Richard Pratt Legacy , Peter MacCallum Cancer Centre , Melbourne , Victoria , Australia., Jefford M; a Australian Cancer Survivorship Centre, a Richard Pratt Legacy , Peter MacCallum Cancer Centre , Melbourne , Victoria , Australia.; b Department of Cancer Experiences Research , Peter MacCallum Cancer Centre , Melbourne , Victoria , Australia.; c Sir Peter MacCallum Department of Oncology , The University of Melbourne , Parkville , Victoria , Australia. |
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| Jazyk: | angličtina |
| Zdroj: | Acta oncologica (Stockholm, Sweden) [Acta Oncol] 2017 Feb; Vol. 56 (2), pp. 183-189. Date of Electronic Publication: 2016 Dec 31. |
| DOI: | 10.1080/0284186X.2016.1266082 |
| Abstrakt: | Background: Survivorship care plans (SCPs) are internationally endorsed as an important tool to enhance post-treatment survivorship care. To support broad implementation of SCPs, we investigated survivors' preferences regarding SCPs. Material and Methods: The study was conducted at a comprehensive cancer center. Eligible patients from 10 clinical services, generally up to 12 months following end of treatment (EOT) were approached in clinics or via telephone. A purpose-designed survey assessed survivors' intended use of a SCP and preferences regarding format and content. Intended minimum sample size of 200. Results: Two hundred and thirty surveys were returned (response rate 68%). Of the 230 participants, over 55% had completed treatment within six months, 35% between six and 12 months, and 10% were receiving ongoing treatments. Most (82%) had not received a SCP and more than one third (42%) reported receiving no information resources at EOT. Almost all (98%) desired further information. Most common information elements desired in a SCP: 'list of symptoms to watch out for and report' (76%), 'summary of treatment received' (70%) and 'things I can do to look after myself' (67%). Most common suggested uses were as: 'a record of cancer treatment' (63%), 'a reminder of things to do to look after myself ' (57%) and 'to help me understand my cancer experience' (56%). Over half (52%) would share the information with their general practitioner. Most indicated preference for paper-based SCPs (91%). There was support for both brief (36%) and detailed versions (42%). Over half requested the information be delivered in a face-to-face discussion with a health professional. Regular telephone support from the treating health care team was most commonly suggested as an additional service to support survivors after EOT. Conclusions: Although similar to international findings, results suggest alternate ways of providing the information that survivors desire. Most desired SCP elements have been defined. A flexible approach to SCP interventions is justified. |
| Databáze: | MEDLINE |
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