The family journey-to-diagnosis with systemic juvenile idiopathic arthritis: a cross-sectional study of the changing social media presence.

Autor:	Modica RF; Division of Pediatric Rheumatology, Immunology and Infectious Diseases, University of Florida, Gainesville, FL, USA., Lomax KG; Immunology and Dermatology Medical Affairs, Novartis Pharmaceuticals Corporation, East Hanover, USA., Batzel P; Treato, Princeton, NJ, USA., Shapardanis L; Treato, Princeton, NJ, USA., Katzer KC; Treato, Princeton, NJ, USA., Elder ME; Division of Pediatric Rheumatology, Immunology and Infectious Diseases, University of Florida, Gainesville, FL, USA.
Jazyk:	angličtina
Zdroj:	Open access rheumatology : research and reviews [Open Access Rheumatol] 2016 May 26; Vol. 8, pp. 61-71. Date of Electronic Publication: 2016 May 26 (Print Publication: 2016).
DOI:	10.2147/OARRR.S105778
Abstrakt:	Background: Children with systemic juvenile idiopathic arthritis (SJIA) often encounter a delay between symptom onset and disease diagnosis, partly due to the broad differential of fever and lack of symptom recognition by providers. Families often seek multiple medical opinions and post on social media about their frustrations. This linguistic analysis observed the changing language patterns and social media posting behaviors of parents in the time leading to, during, and after SJIA diagnosis. Methods: Public social media sites were manually reviewed by a linguistic team to evaluate posts about SJIA from US-based parents. Results: A total of 3,979 posts between July 2001 and January 2015 were reviewed from 108 sites. Pre-SJIA diagnosis parents sought answers and shared status updates on social media, focusing primarily on the following three site types: alternative/natural lifestyle forums (39%), Facebook (27%), and disease-specific forums (17%). Posts during early prediagnosis phases were characterized by expressive language showing confidence in health care providers and trust in parental instincts. At later prediagnosis stages, parents continued to use social media, but the posts demonstrated increased frustration with delays in diagnosis and gaps in communication with providers. More objective symptom descriptions and a greatly reduced child-centered emotional focus were observed as parents shifted into caregiving roles. Once the diagnosis of SJIA was confirmed, parents used straightforward, less expressive language, and Facebook (47%) to make "announcement" posts and increased their use of SJIA websites (30%). With treatment initiation, the posts demonstrated a slow return of expressive language and an increased parental understanding of the "new normal". Conclusion: Parents use different language styles, frames of reference, and websites before and after SJIA diagnosis. Gaps in parent-provider communication, especially before diagnosis, and their new roles as caregivers lead to parental use of social media to express frustration with the health care process. Providers should tailor their discussions with parents to address these issues. Competing Interests: KGL is an employee of the Novartis Pharmaceuticals Corporation. RFM, PB, LS, KCK, and MEE report no conflicts of interest in this work. The authors had full control of the contents of this article.
Databáze:	MEDLINE
Externí odkaz:	Zobrazit plný text záznamu