Core requirements for successful data linkage: an example of a triangulation method.

Autor:	Hopf YM; Centre of Academic Primary Care, University of Aberdeen, Aberdeen, UK., Francis J; School of Health Sciences, City University London, London, UK., Helms PJ; Child Health, University of Aberdeen, Royal Aberdeen Children's Hospital, Aberdeen, UK., Haughney J; Centre of Academic Primary Care, University of Aberdeen, Aberdeen, UK., Bond C; Centre of Academic Primary Care, University of Aberdeen, Aberdeen, UK.
Jazyk:	angličtina
Zdroj:	BMJ open [BMJ Open] 2016 Oct 21; Vol. 6 (10), pp. e011879. Date of Electronic Publication: 2016 Oct 21.
DOI:	10.1136/bmjopen-2016-011879
Abstrakt:	Objectives: The aim was to explore the views of professional stakeholders and healthcare professionals (HCPs) on the linkage of UK National Health Service (NHS) data for paediatric pharmacovigilance purposes and to make recommendations for such a system. Methods: A mixed methods approach including a literature review, interviews, focus groups and a three-round Delphi survey with HCPs in Scotland was followed by a triangulation process using a systematic protocol. The survey was structured using the Theoretical Domains Framework of behaviour change. Items retained after applying the matrix-based triangulation process were thematically coded. Ethical approval was granted by the North of Scotland Research Ethics Service. Results: Results from 18 papers, 23 interviewees, 23 participants of focus groups and 61 completed questionnaires in the Delphi survey contributed to the triangulation process. A total of 25 key findings from all four studies were identified during triangulation. There was good convergence; 21 key findings were agreed and remained to inform recommendations. The items were coded as practical/technical (eg, decision about the unique patient identifier to use), mandatory (eg, governed by statute), essential (consistently mentioned in all studies and therefore needed to ensure professional support) or preferable. Conclusions: The development of a paediatric linked database has support from professional stakeholders and HCPs in Scotland. The triangulation identified three sets of core requirements for a new system of data linkage. An additional fourth set of 'preferable' requirements might increase engagement of HCPs and their support for the new system. Competing Interests: Conflicts of Interest: None declared. (Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/.)
Databáze:	MEDLINE
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