Patient and parent/guardian perspectives on the health care of adults with mental retardation.

Autor: Voss Horrell SC; SVHORREL@uwyo.edu, Maclean WE Jr, Conley VM
Jazyk: angličtina
Zdroj: Mental retardation [Ment Retard] 2006 Aug; Vol. 44 (4), pp. 239-48.
DOI: 10.1352/0047-6765(2006)44[239:PAGPOT]2.0.CO;2
Abstrakt: Individuals with mental retardation and their parents/guardians have long been neglected in health care research. In this study we used a qualitative methodology to describe the experiences adults with mental retardation and their parents/guardians have with the delivery of primary care services. Semi-structured in-depth interviews were conducted with 12 adults who had mental retardation and 9 parents/guardians. The grounded theory approach was utilized to guide data collection and analysis. Findings suggest an overall positive experience with primary care services. Unique themes were identified that distinguished parent/guardian experiences from those of adults with mental retardation, who focused on immediate, concrete issues related to service delivery, whereas parents/ guardians focused on more peripheral or abstract issues related to the delivery of primary care.
Databáze: MEDLINE