Coping with Wolf-Hirschhorn syndrome: quality of life and psychosocial features of family carers.

Autor: Berrocoso, Sarah1 (AUTHOR) sarah.berrocoso@deusto.es, Amayra, Imanol1 (AUTHOR), Lázaro, Esther1 (AUTHOR), Martínez, Oscar1 (AUTHOR), López-Paz, Juan Francisco1 (AUTHOR), García, Maitane1 (AUTHOR), Pérez, Manuel1 (AUTHOR), Al-Rashaida, Mohammad1 (AUTHOR), Rodríguez, Alicia Aurora1 (AUTHOR), Luna, Paula Maria1 (AUTHOR), Pérez-Núñez, Paula1 (AUTHOR), Blanco, Raquel2 (AUTHOR), Nevado, Julián3 (AUTHOR)
Zdroj: Orphanet Journal of Rare Diseases. 10/19/2020, Vol. 15 Issue 1, p1-14. 14p.
Databáze: Academic Search Ultimate
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