Zobrazeno 1 - 10
of 35
pro vyhledávání: '"women with bleeding disorders"'
Autor:
Bashari Dalia
Publikováno v:
The Journal of Haemophilia Practice, Vol 10, Iss 1, Pp 33-35 (2023)
A nurse at Israel’s National Hemophilia Center for over 35 years, Dalia reflects on lifelong relationships with patients and the ‘family approach’ to care in the context of her experience of caring for a woman with severe haemophilia A. Having
Externí odkaz:
https://doaj.org/article/6a9524e380834264912fb6e53e183a6d
Autor:
Pollard Debra, Khair Kate
Publikováno v:
The Journal of Haemophilia Practice, Vol 9, Iss 1, Pp 137-142 (2022)
Many of the experiences described by women 20 years ago remain prevalent today, and healthcare provision needs to change to offer better treatment and support to women in the bleeding disorder community. These were the key findings of the recently pu
Externí odkaz:
https://doaj.org/article/304cfdd42d0b410b8d66ec4dd173af83
Autor:
Noone Declan, d’Oiron Roseline
Publikováno v:
The Journal of Haemophilia Practice, Vol 9, Iss 1, Pp 121-125 (2022)
Systematic structures to understand the incidence and prevalence of bleeding disorders in women and girls are in place in some countries and becoming more robust, though there is still room for improvement. More co-ordinated data gathering is providi
Externí odkaz:
https://doaj.org/article/b060467dac8f4f188991c36e0fc52ac5
Autor:
Radhakrishnan Sheila, d’Oiron Roseline
Publikováno v:
The Journal of Haemophilia Practice, Vol 9, Iss 1, Pp 126-131 (2022)
As life expectancy increases, women with bleeding disorders can expect to live for decades after their menopause – potentially with a range of comorbidities including cardiovascular (CV) disease, cancer and osteoporosis. Menstrual bleeding around t
Externí odkaz:
https://doaj.org/article/b90a34991f534f35a9846f5457805ebe
Autor:
Grimberg Evelyn
Publikováno v:
The Journal of Haemophilia Practice, Vol 9, Iss 1, Pp 143-146 (2022)
Raising awareness that bleeding disorders affect women – not just men – is a key part of advocacy initiatives around the world. The European Haemophilia Consortium (EHC) and national patient organisations have run successful campaigns, with a wea
Externí odkaz:
https://doaj.org/article/eb20b63fbfc446d98743da52863f3093
Autor:
Dougall Alison, Frenzel Laurent
Publikováno v:
The Journal of Haemophilia Practice, Vol 9, Iss 1, Pp 132-136 (2022)
Maintaining good musculoskeletal health, including good oral health, is as important for women with bleeding disorders (WBD) as it is for men. Many people with bleeding disorders ignore bleeding from their gums, believing it to be part of their condi
Externí odkaz:
https://doaj.org/article/dabd696f1fa549b3b798948d8e9782a0
Autor:
Sugg Nicola, Morgan Debra
Publikováno v:
The Journal of Haemophilia Practice, Vol 8, Iss 1, Pp 15-31 (2021)
Women with a bleeding disorder (WBD), including those diagnosed as a carrier, often have heavy periods associated with prolonged bleeding and pain. This survey sought to describe the impact of this substantial burden on daily living and the personal
Externí odkaz:
https://doaj.org/article/16475d690fa84fdea17759e82af61c2e
Autor:
Roseline d'Oiron, Ellen Laan, Karin P M van Galen, Eveline P. Mauser-Bunschoten, Lotte Haverman, Manon E L Degenaar, Dietje E. Fransen van de Putte, Rezan A. Kadir, Petra Elfvinge, Lorynn Teela
Publikováno v:
Haemophilia, 27(3), 463-469. Wiley-Blackwell
Haemophilia
Haemophilia
Introduction Multidisciplinary management of women‐specific bleeding is important to preserve quality of life, healthy reproduction and social participation of women and girls with bleeding disorders (WBD). Aim To support appropriate multidisciplin
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b8d7f88b0d9cd7e44efe09849b356c75
https://doi.org/10.1111/hae.14221
https://doi.org/10.1111/hae.14221
Publikováno v:
Haemophilia, 25(3), 468. Wiley-Blackwell
Introduction Historically, issues faced by women with bleeding disorders (WBD) have been underestimated. While advances in genetic testing have resulted in improvements, significant challenges remain in the initial recognition of abnormal bleeding an
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0bbc1e81f2cb490d8b15098a8d1e255d
https://doi.org/10.1111/hae.13722
https://doi.org/10.1111/hae.13722
Autor:
Mariana Oviedo Ovando, Elisa Tsao, Robert F. Sidonio, Justyna Tymoszczuk, Roshni Kulkarni, Ateefa Chaudhury, Nisha Jain
Publikováno v:
Haemophilia
Introduction Women or girls with haemophilia (WGH) represent a group of female symptomatic carriers who experience bleeding events more frequently than non-carriers. Bleeding events include spontaneous/traumatic bleeds and prolonged bleeding related
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8b8793ac40f21484a753c3c8dff4075e
https://pubmed.ncbi.nlm.nih.gov/33368856
https://pubmed.ncbi.nlm.nih.gov/33368856