“We Absolutely Had the Impression That It Was Our Decision”—A Qualitative Study with Parents of Critically Ill Infants Who Participated in End-of-Life Decision Making

Autor: Schouten, Maria Florentine Beyer, Katja Kuehlmeyer, Pezi Mang, Andreas W. Flemmer, Monika Führer, Georg Marckmann, Mirjam de Vos, Esther Sabine

Publikováno v: Children; Volume 10; Issue 1; Pages: 46

Background: Guidelines recommend shared decision making (SDM) between neonatologists and parents when a decision has to be made about the continuation of life-sustaining treatment (LST). In a previous study, we found that neonatologists and parents a

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"We Absolutely Had the Impression That It Was Our Decision"-A Qualitative Study with Parents of Critically Ill Infants Who Participated in End-of-Life Decision Making.

Autor: Beyer MF; Division Neonatology, Department of Pediatrics, Dr. von Hauner Children's Hospital, LMU University Hospital, 80337 Munich, Germany., Kuehlmeyer K; Institute of Ethics, History and Theory of Medicine, LMU Munich, 80336 Munich, Germany., Mang P; Division Neonatology, Department of Pediatrics, Dr. von Hauner Children's Hospital, LMU University Hospital, 80337 Munich, Germany., Flemmer AW; Division Neonatology, Department of Pediatrics, Dr. von Hauner Children's Hospital, LMU University Hospital, 80337 Munich, Germany., Führer M; Center for Pediatric Palliative Care, Department of Pediatrics, Dr. von Hauner Children's Hospital, LMU University Hospital, 80364 Munich, Germany., Marckmann G; Institute of Ethics, History and Theory of Medicine, LMU Munich, 80336 Munich, Germany., de Vos M; Department of Paediatrics, Emma Children's Hospital, Amsterdam University Medical Centre, 1081 HV Amsterdam, The Netherlands., Schouten ES; Division Neonatology, Department of Pediatrics, Dr. von Hauner Children's Hospital, LMU University Hospital, 80337 Munich, Germany.

Publikováno v: Children (Basel, Switzerland) [Children (Basel)] 2022 Dec 26; Vol. 10 (1). Date of Electronic Publication: 2022 Dec 26.