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Psychosocial Impact of a True-Positive, False-Positive, or Inconclusive Newborn Bloodspot Screening Result: A Questionnaire Study among Parents.

Autor: van den Heuvel LM; Department of Human Genetics, Amsterdam UMC, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The Netherlands.; Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, 1100 DD Amsterdam, The Netherlands., van der Pal SM; Department of Child Health, Netherlands Organization for Applied Scientific Research TNO, 2333 BE Leiden, The Netherlands., Verschoof-Puite RK; Department for Vaccine Supply and Prevention Programmes, RIVM Dutch National Institute for Public Health and the Environment, 3720 BA Bilthoven, The Netherlands., Klapwijk JE; Department of Human Genetics, Amsterdam UMC, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The Netherlands.; Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, 1100 DD Amsterdam, The Netherlands., Elsinghorst E; Centre for Population Screening, RIVM Dutch National Institute for Public Health and Environment, 3720 BA Bilthoven, The Netherlands., Dekkers E; Centre for Population Screening, RIVM Dutch National Institute for Public Health and Environment, 3720 BA Bilthoven, The Netherlands., van der Ploeg CPB; Department of Child Health, Netherlands Organization for Applied Scientific Research TNO, 2333 BE Leiden, The Netherlands., Henneman L; Department of Human Genetics, Amsterdam UMC, Vrije Universiteit Amsterdam, 1007 MB Amsterdam, The Netherlands.; Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, 1100 DD Amsterdam, The Netherlands.

Publikováno v: International journal of neonatal screening [Int J Neonatal Screen] 2024 Mar 05; Vol. 10 (1). Date of Electronic Publication: 2024 Mar 05.

Expanding Neonatal Bloodspot Screening: A Multi-Stakeholder Perspective.

Autor: van Dijk T; Department of Human Genetics and Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands., Kater A; Department of Human Genetics and Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands., Jansen M; Department of Human Genetics and Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands., Dondorp WJ; Department of Health, Ethics and Society, CAPHRI Care and Public Health Research Institute, and Research School GROW for Oncology & Developmental Biology, Maastricht University, Maastricht, Netherlands., Blom M; Laboratory for Pediatric Immunology, Department of Pediatrics, Willem-Alexander Children's Hospital, Leiden University Medical Center, Leiden, Netherlands., Kemp S; Laboratory Genetic Metabolic Diseases, Department of Clinical Chemistry, Amsterdam UMC, Amsterdam Gastroenterology and Metabolism, University of Amsterdam, Amsterdam, Netherlands., Langeveld M; Department of Endocrinology and Metabolism, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands., Cornel MC; Department of Human Genetics and Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands., van der Pal SM; Department of Child Health, TNO, Leiden, Netherlands., Henneman L; Department of Human Genetics and Amsterdam Reproduction and Development Research Institute, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.

Publikováno v: Frontiers in pediatrics [Front Pediatr] 2021 Oct 06; Vol. 9, pp. 706394. Date of Electronic Publication: 2021 Oct 06 (Print Publication: 2021).

Reproductive risks in 35-year-old adults born very preterm and/or with very low birth weight: an observational study.

Autor: van der Pal SM; TNO Child Health, PO Box 3005, NL, 2301, DA, Leiden, The Netherlands. sylvia.vanderpal@tno.nl., van der Meulen SA; TNO Child Health, PO Box 3005, NL, 2301, DA, Leiden, The Netherlands., Welters SM; Department of Obstetrics and Gynecology, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam Reproduction & Development Research Institute, Amsterdam, The Netherlands., Bakker LA; TNO Child Health, PO Box 3005, NL, 2301, DA, Leiden, The Netherlands., de Groot CJM; Department of Obstetrics and Gynecology, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam Reproduction & Development Research Institute, Amsterdam, The Netherlands., van Kaam AH; Department of Neonatology, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands., Verrips EGHW; TNO Child Health, PO Box 3005, NL, 2301, DA, Leiden, The Netherlands.

Publikováno v: European journal of pediatrics [Eur J Pediatr] 2021 Apr; Vol. 180 (4), pp. 1219-1228. Date of Electronic Publication: 2020 Nov 07.

Psychosocial developmental trajectory of a cohort of young adults born very preterm and/or with a very low birth weight in the Netherlands.

Autor: van der Pal SM; TNO, Child Health, PO Box 3005, 2301, Leiden, DA, the Netherlands. Sylvia.vanderpal@tno.nl., Maurice-Stam H; Psychosocial Department, Emma Children's Hospital, University Medical Center, Amsterdam, Netherlands., Grootenhuis MA; Psychosocial Department, Emma Children's Hospital, University Medical Center, Amsterdam, Netherlands.; Princess Máxima Center for paediatric oncology, Utrecht, Netherlands., van Wassenaer-Leemhuis AG; Department of Neonatology, Emma Children's Hospital, Amsterdam University Medical Center, Amsterdam, Netherlands., Verrips GHW; TNO, Child Health, PO Box 3005, 2301, Leiden, DA, the Netherlands.

Publikováno v: Journal of patient-reported outcomes [J Patient Rep Outcomes] 2019 Mar 07; Vol. 3 (1), pp. 17. Date of Electronic Publication: 2019 Mar 07.