Zobrazeno 1 - 6
of 6
pro vyhledávání: '"the Vasculitis Patient‐Powered Research Network"'
Autor:
Shubhasree Banerjee, Michael George, Kalen Young, Shilpa Venkatachalam, Jennifer Gordon, Cristina Burroughs, David Curtis, Marcela Ferrada, Kelly Gavigan, Peter C. Grayson, Joyce Kullman, Maria I. Danila, Jeffrey R. Curtis, Dianne G. Shaw, W. Benjamin Nowell, Peter A. Merkel, the Vasculitis Patient‐Powered Research Network
Publikováno v:
ACR Open Rheumatology, Vol 3, Iss 1, Pp 17-24 (2021)
Objective This study aimed to analyze the concerns and health‐related behaviors in patients with vasculitis during the early phase of the coronavirus disease 2019 (COVID‐19) pandemic in North America. Methods Patients with vasculitis in North Ame
Externí odkaz:
https://doaj.org/article/673b4b1082ab4575bbf150622c7addf3
Autor:
Antoine G. Sreih, Keri Cronin, Dianne G. Shaw, Kalen Young, Cristina Burroughs, Joyce Kullman, Kirthi Machireddy, Carol A. McAlear, Peter A. Merkel, for the Vasculitis Patient-Powered Research Network
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Abstract Background Patients with vasculitis, a set of rare diseases, encounter delays in obtaining an accurate diagnosis which can lead to substantial morbidity and increased mortality. This study sought to describe the diagnostic journey of patient
Externí odkaz:
https://doaj.org/article/00ccab25353a4cfc92deb61775d20863
Autor:
Kalen Young, Dana Kaminstein, Ana Olivos, Cristina Burroughs, Celeste Castillo-Lee, Joyce Kullman, Carol McAlear, Dianne G. Shaw, Antoine Sreih, George Casey, Vasculitis Patient-Powered Research Network, Peter A. Merkel
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-7 (2019)
Abstract Background There is increasing interest in actively involving patients in the process of medical research to help ensure research is relevant and important to both researchers and people affected by the disease under study. This project exam
Externí odkaz:
https://doaj.org/article/31241b7f65b54dc888c130c5073aff00
Autor:
Antoine G. Sreih, Keri Cronin, Dianne G. Shaw, Kalen Young, Cristina Burroughs, Joyce Kullman, Kirthi Machireddy, Carol A. McAlear, Peter A. Merkel, for the Vasculitis Patient-Powered Research Network
Publikováno v:
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Background Patients with vasculitis, a set of rare diseases, encounter delays in obtaining an accurate diagnosis which can lead to substantial morbidity and increased mortality. This study sought to describe the diagnostic journey of patients with va
Autor:
Sreih, Antoine G., Cronin, Keri, Shaw, Dianne G., Young, Kalen, Burroughs, Cristina, Kullman, Joyce, Machireddy, Kirthi, McAlear, Carol A., Merkel, Peter A., Vasculitis Patient-Powered Research Network
Publikováno v:
Orphanet Journal of Rare Diseases; 4/21/2021, Vol. 16 Issue 1, p1-8, 8p
Autor:
Young, Kalen, Kaminstein, Dana, Olivos, Ana, Burroughs, Cristina, Castillo-Lee, Celeste, Kullman, Joyce, McAlear, Carol, Shaw, Dianne G., Sreih, Antoine, Casey, George, Merkel, Peter A., Vasculitis Patient-Powered Research Network
Publikováno v:
Orphanet Journal of Rare Diseases; 1/24/2019, Vol. 14 Issue 1, p1-7, 7p