The importance of patient-partnered research in addressing long COVID: Takeaways for biomedical research study design from the RECOVER Initiative’s Mechanistic Pathways taskforce

Autor: C Kim, Benjamin Chen, Sindhu Mohandas, Jalees Rehman, Zaki A Sherif, K Coombs, RECOVER Mechanistic Pathways Task Force, on behalf of the RECOVER Initiative

Publikováno v: eLife, Vol 12 (2023)

The NIH-funded RECOVER study is collecting clinical data on patients who experience a SARS-CoV-2 infection. As patient representatives of the RECOVER Initiative’s Mechanistic Pathways task force, we offer our perspectives on patient motivations for

Externí odkaz: https://doaj.org/article/57c7d55a0d824ad5a42c238d5db4ab82

Lessons for Patient Engagement in Research in Low- and Middle-Income Countries

Autor: Ana Janic, Kahaki Kimani, Isabel Olembo, Helen Dimaras

Publikováno v: Ophthalmology and Therapy, Vol 9, Iss 2, Pp 221-229 (2020)

Abstract Patient engagement in research is marked by partnership between clinicians, scientists, and people with lived experience of a disease, who jointly develop and implement research and disseminate results. Patient engagement in research has bee

Externí odkaz: https://doaj.org/article/606c6215ff76412b9cb0f776da404f22

Creating Safe Spaces: A Community Health Worker-Academic Partnered Approach to Addressing Intimate Partner Violence

Autor: Yana Sutton, Barbara Lacen Keller, Catherine Haywood, Ashlee Walker, Ashley Wennerstrom, Maeve Wallace, Benjamin Springgate, Marva L. Lewis, Katherine P. Theall, Meredith Sugarman, Trupania Bonner

Publikováno v: Ethnicity & Disease. 28:317-324

Intimate partner violence (IPV) is a persistent public health problem in the United States, with an estimated one in three women experiencing rape, physical violence, and/or stalking by an intimate partner within her lifetime. Non-Hispanic Black wome

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d055b7cac5caf0c8a69c576cde491055
https://doi.org/10.18865/ed.28.s2.317

THE COMMUNITY AND PATIENT PARTNERED RESEARCH NETWORK (CPPRN): APPLICATION OF PATIENT-CENTERED OUTCOMES RESEARCH TO PROMOTE BEHAVIORAL HEALTH EQUITY

Autor: Sheryl H. Kataoka, Pluscedia Williams, Bowen Chung, Kenneth B. Wells, Catherine Haywood, Armen C. Arevian, Angela L. Kirkland, Diana Meyers, Lingqi Tang, Anish P. Mahajan, Ryan Pasternak, Olivia K. Sugarman, Sarah L. Starks, Rubinee Simmasalam, Enrico G. Castillo, Ashley Wennerstrom, Felica Jones, Max Stevens, Krystal Griffith, Benjamin Springgate, Loretta Jones

Publikováno v: Arevian, AC; Springgate, B; Jones, F; Starks, SL; Chung, B; Wennerstrom, A; et al.(2018). THE COMMUNITY AND PATIENT PARTNERED RESEARCH NETWORK (CPPRN): APPLICATION OF PATIENT-CENTERED OUTCOMES RESEARCH TO PROMOTE BEHAVIORAL HEALTH EQUITY. ETHNICITY & DISEASE, 28, 295-302. doi: 10.18865/ed.28.S2.295. UCLA: Retrieved from: http://www.escholarship.org/uc/item/4606b226
Ethnicity & disease, vol 28, iss Suppl 2

Objective: We describe the rationale, de­velopment, and progress on the Community and Patient Partnered Research Network (CPPRN). The CPPRN builds on more than a decade of partnered work and is designed to promote health equity by developing partner

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b882d22b9d24fb7b779f588797140533
http://www.escholarship.org/uc/item/4606b226

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