Zobrazeno 1 - 10
of 2 023
pro vyhledávání: '"patient registry"'
Autor:
Gerard G. Dumancas, Oliver B. Generalao, Hans Carlo E. Rivera, Pia Regina Fatima Zamora-Rico, Jonathan Adam A. Rico, Fresthel Monica M. Climacosa, Salvador Eugenio C. Caoili, Romulo de Castro
Publikováno v:
COVID, Vol 4, Iss 11, Pp 1776-1793 (2024)
The purpose of this review is to evaluate various challenges and opportunities as well as propose solutions for the development and implementation of a prospective COVID-19 patient registry within a regional context in the Philippines. To comprehensi
Externí odkaz:
https://doaj.org/article/9f67e55454ef415bb3c824ba7d3d30ff
Publikováno v:
BMC Pregnancy and Childbirth, Vol 24, Iss 1, Pp 1-10 (2024)
Abstract Background and aims Although minimally invasive hysterectomy offers advantages, abdominal hysterectomy remains the predominant surgical method. Creating a standardized dataset and establishing a hysterectomy registry system present opportuni
Externí odkaz:
https://doaj.org/article/cb562be3b9f04f6c863a402f3910b8c4
Autor:
Madoka Mori-Yoshimura, Keiko Ishigaki, Yuko Shimizu-Motohashi, Naoko Ishihara, Atushi Unuma, Sumiko Yoshida, Harumasa Nakamura
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-10 (2024)
Abstract Background Little is known about the social difficulties and health care needs of adult Duchenne muscular dystrophy (DMD) patients in Japan, as well as the financial and physical stress experienced by their caregivers. This study aimed to cl
Externí odkaz:
https://doaj.org/article/9c750e34a3ff45deba144985e73972dc
Autor:
Grace C. Zhou, Ziyun Wang, Anushka K. Palipana, Eleni-Rosalina Andrinopoulou, Pedro Miranda Afonso, Gary L. McPhail, Christopher M. Siracusa, Emrah Gecili, Rhonda D. Szczesniak
Publikováno v:
Respiratory Research, Vol 25, Iss 1, Pp 1-9 (2024)
Abstract Background Modulator therapies that seek to correct the underlying defect in cystic fibrosis (CF) have revolutionized the clinical landscape. Given the heterogeneous nature of lung disease progression in the post-modulator era, there is a ne
Externí odkaz:
https://doaj.org/article/9daae516b59548be875e50f586862f95
Autor:
Møller A, Eldrup N, Wetterslev J, Hellemann D, Nielsen HB, Rostgaard K, Hjalgrim H, Pedersen OB
Publikováno v:
Clinical Epidemiology, Vol Volume 16, Pp 175-189 (2024)
Anders Møller,1,2 Nikolaj Eldrup,3– 5 Jørn Wetterslev,6 Dorthe Hellemann,1,5 Henning Bay Nielsen,7,8 Klaus Rostgaard,9,10 Henrik Hjalgrim,5,9– 11,* Ole Birger Pedersen5,10,12,* 1Department of Anesthesia and Intensive Care, Næstved-Slag
Externí odkaz:
https://doaj.org/article/df2c771b15e84c9bba959585302312ac
Autor:
Møller A, Eldrup N, Wetterslev J, Hellemann D, Nielsen HB, Rostgaard K, Hjalgrim H, Pedersen OB
Publikováno v:
Vascular Health and Risk Management, Vol Volume 20, Pp 125-140 (2024)
Anders Møller,1,2 Nikolaj Eldrup,3– 5 Jørn Wetterslev,6 Dorthe Hellemann,1,5 Henning Bay Nielsen,7,8 Klaus Rostgaard,9,10 Henrik Hjalgrim,5,9– 11,* Ole Birger Pedersen5,10,12,* 1Department of Anesthesia and Intensive Care, Næstved-Slag
Externí odkaz:
https://doaj.org/article/cb5342ce007c4d869ce99035363fd731
Publikováno v:
Journal of Comparative Effectiveness Research, Vol 13, Iss 9 (2024)
Aim: Although the US FDA encourages manufacturers of medical devices to submit real-world evidence (RWE) to support regulatory decisions, the ability of real-world data (RWD) to generate evidence suitable for decision making remains unclear. The 20
Externí odkaz:
https://doaj.org/article/8802af65108c41fa878c7711c3193b07
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-13 (2024)
Abstract Background Spinal Muscular Atrophy (SMA) is a rare neuromuscular disorder characterized by progressive degeneration of motor neurons and muscle weakness resulting in premature death or severe motor disability. Over the last decade, SMA has d
Externí odkaz:
https://doaj.org/article/d134da28f89d4e76a436de919ede578a
Publikováno v:
Neuropsychiatric Disease and Treatment, Vol Volume 20, Pp 257-269 (2024)
David A Isaacs,1,2 Kemberlee Bonnet,3 Michelle R Eckland,1 Kimberly Markowitz,4 Maria Pena,5 David G Schlundt3 1Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA; 2Department of Pediatrics, Division of Pediatric Neurol
Externí odkaz:
https://doaj.org/article/0961e5e576ac42b5a7efda625d6d8057
Publikováno v:
Biology Open, Vol 13, Iss 4 (2024)
Externí odkaz:
https://doaj.org/article/a78aba6b825b42bd8451cc4c181641ca