Zobrazeno 1 - 10
of 250
pro vyhledávání: '"patient organization"'
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-8 (2023)
Abstract Background During the COVID-19 pandemic people affected by rare diseases (RD) or caregiver of affected children have faced additional challenges. The pandemic has affected physical and mental health, social life and has led to financial cons
Externí odkaz:
https://doaj.org/article/61a99151df744a2487150bfd7ae8ca44
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-7 (2021)
Abstract Background Rare disease patients are geographically dispersed, posing challenges to research. Some researchers have partnered with patient organizations and used web-based approaches to overcome geographic recruitment barriers. Critics of su
Externí odkaz:
https://doaj.org/article/6627faee1b6e4c51a7500301c312bcbb
Publikováno v:
Frontiers in Endocrinology, Vol 13 (2022)
Congenital hyperinsulinism (HI) is a rare disease affecting newborns. HI causes severe hypoglycemia due to the overproduction of insulin. The signs and symptoms of hypoglycemia in HI babies is often not discovered until brain damage has already occur
Externí odkaz:
https://doaj.org/article/9102a53203c14675a5cf5c4a837ddc8f
Publikováno v:
Patient Preference and Adherence, Vol Volume 14, Pp 587-597 (2020)
Christoph Rach,1 Jan Lukas,2 Regina Müller,1 Matthias Sendler,3 Peter Simon,3 Sabine Salloch1 1Institute of Ethics and History of Medicine, University Medicine Greifswald, Greifswald, Germany; 2Translational Neurodegeneration Section (Albrecht-Kosse
Externí odkaz:
https://doaj.org/article/bb581162a0384a5e9ada27c68b5e358a
Autor:
Erin E. Brown
Publikováno v:
Frontiers in Communication, Vol 6 (2021)
This article employed a content analysis method utilizing the Centers for Disease Control and Prevention’s Clear Communication Index to evaluate the quality and reliability of 15 patient organization websites designed for patients to access informa
Externí odkaz:
https://doaj.org/article/8bed83f0dec2468cbb8ce5b1c9cbb810
Akademický článek
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Publikováno v:
Healthcare Public Health : Improving health services through population science, 2020.
Externí odkaz:
https://doi.org/10.1093/oso/9780198837206.003.0004
Publikováno v:
Patient Preference and Adherence, Vol Volume 12, Pp 673-679 (2018)
Jui-Hua Tsai, Ellen Janssen, John FP Bridges Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA Abstract: Patient groups are increasingly engaging in research to understand patients’ pref
Externí odkaz:
https://doaj.org/article/45100260729a45ea847cd843aaf4bf73
Akademický článek
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Publikováno v:
BMC Health Services Research, Vol 17, Iss 1, Pp 1-12 (2017)
Abstract Background Trust within organizations is important for ensuring members’ acceptance of the organization’s activities and to expand their scope of action. Remarkably, Patient Organizations (POs) that often both function as a forum for sel
Externí odkaz:
https://doaj.org/article/c0b44c8f5d464af2b2863f2452804256