Zobrazeno 1 - 10
of 105
pro vyhledávání: '"patient experience data"'
Publikováno v:
Frontiers in Medicine, Vol 11 (2024)
Since its commencement as part of the Food and Drug Administration’s (FDA) Prescription Drug User Fee Act (PDUFA) V in 2012, patient-focused drug development (PFDD) has become an integral part of the drug development paradigm. FDA encourages the de
Externí odkaz:
https://doaj.org/article/6b0d2edc02bd4ec89e8bc667e5fcc799
Autor:
Diogo Almeida, Denise Umuhire, Rosa Gonzalez-Quevedo, Ana António, Juan Garcia Burgos, Patrice Verpillat, Nathalie Bere, Bruno Sepodes, Carla Torre
Publikováno v:
Frontiers in Medicine, Vol 11 (2024)
Patient experience data (PED), provided by patients/their carers without interpretation by clinicians, directly capture what matters more to patients on their medical condition, treatment and impact of healthcare. PED can be collected through differe
Externí odkaz:
https://doaj.org/article/79a1128a48854af0babdf4fed9fba608
Autor:
Tom Willgoss, Omar A. Escontrias, Carole Scrafton, Elisabeth Oehrlein, Victoria Livingstone, Fiona C. Chaplin, Maddalena Benivento, Hayley Chapman, Nicholas Brooke
Publikováno v:
Research Involvement and Engagement, Vol 9, Iss 1, Pp 1-11 (2023)
Abstract Background Putting patients’ needs and priorities at the forefront of healthcare initiatives and medical product development is critical to achieve outcomes that matter most to patients. This relies on the integration of early, meaningful
Externí odkaz:
https://doaj.org/article/d683ca17f1774908a0e39a7ddcce50b7
Autor:
Lucilla Piccari, Gabor Kovacs, Steve Jones, Hall Skaara, Claudia Roca Herms, Gabriela Silvina Bacchini Jeanneret, Melquiades Calzado Vinardell, Nuria Gonzalez‐Rojas Guix, Miriam Fernandez Delgado, Héctor Gálvez García, David Schwicker
Publikováno v:
Pulmonary Circulation, Vol 14, Iss 2, Pp n/a-n/a (2024)
Abstract Pulmonary hypertension (PH) adds a substantial disease burden, including higher mortality, when associated with interstitial lung disease (ILD), a severe, chronic, progressive condition. Yet little is known of the lived experiences, perspect
Externí odkaz:
https://doaj.org/article/f0afdccc6efb47f1b9f7ca5dac0a0c41
Autor:
Philipp Cimiano, Ben Collins, Maria Carmela De Vuono, Thierry Escudier, Jürgen Gottowik, Matthias Hartung, Mathias Leddin, Bikalpa Neupane, Raul Rodriguez-Esteban, Ana Lucia Schmidt, Cornelius Starke-Knäusel, Maarten Voorhaar, Krzysztof Wieckowski
Publikováno v:
Frontiers in Medicine, Vol 11 (2024)
Patients, life science industry and regulatory authorities are united in their goal to reduce the disease burden of patients by closing remaining unmet needs. Patients have, however, not always been systematically and consistently involved in the dru
Externí odkaz:
https://doaj.org/article/e5abb5d01e8e4320baa1e8a71fd224e8
Autor:
Desai, Amit, Zoccatelli, Giulia, Donetto, Sara, Robert, Glenn, Allen, Davina, Rafferty, Anne Marie, Brearley, Sally
Publikováno v:
Journal of Organizational Ethnography, 2023, Vol. 12, Issue 2, pp. 194-208.
Externí odkaz:
http://www.emeraldinsight.com/doi/10.1108/JOE-06-2022-0014
Autor:
Rosanne Janssens, Liese Barbier, Mireille Muller, Irina Cleemput, Isabelle Stoeckert, Chiara Whichello, Bennett Levitan, Tarek A. Hammad, Charis Girvalaki, Juan-Jose Ventura, Karin Schölin Bywall, Cathy Anne Pinto, Elise Schoefs, Eva G. Katz, Ulrik Kihlbom, Isabelle Huys
Publikováno v:
Frontiers in Pharmacology, Vol 14 (2023)
Objective: Patients have unique insights and are (in-)directly affected by each decision taken throughout the life cycle of medicinal products. Patient preference studies (PPS) assess what matters most to patients, how much, and what trade-offs patie
Externí odkaz:
https://doaj.org/article/805a297780d245ba87369a0bda9aa40c
Akademický článek
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Akademický článek
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Publikováno v:
Patient Preference and Adherence, Vol Volume 15, Pp 1807-1815 (2021)
Karen Beny,1,2 Benjamin du Sartz de Vigneulles,1 Valerie Chamouard,3,4 Ronald Guilloux,5 Valérie Gay,6 Claude Negrier,3 Claude Dussart1,2 1EA 4129 Laboratory P2S (Health Systemic Process), University of Lyon, University Claude Bernard Lyon 1, Lyon,
Externí odkaz:
https://doaj.org/article/6c51f37618334b90a6bf38b472706c37