Zobrazeno 1 - 10
of 190
pro vyhledávání: '"patient and public involvement and engagement"'
Autor:
Gwenda Simons, Helen Jones, Ian Clarke, Firoza Davies, Stacey Grealis, Elspeth Insch, Hameed Kahn, Joanne Lloyd, Al Richards, Hayley Rose, Ruth Williams, Maarten de Wit, Clarissa Woodcock, Leigh Romaniuk, Michelle Bardgett, Arthur G. Pratt, Marie Falahee
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-12 (2024)
Abstract Background The value of patient and public involvement (PPI) during the earliest stages of clinical trial development, and prior to the award of substantive funding, is widely recognised. However, it is often under-resourced and PPI processe
Externí odkaz:
https://doaj.org/article/91b3f21c532e4ba892b241278e6993f2
Autor:
Olalekan Lee Aiyegbusi, Christel McMullan, Sarah E. Hughes, Grace M. Turner, Shamil Haroon, Richard Hotham, Kirsty Brown, Yvonne Alder, Lisa Agyen, Lewis Buckland, Jennifer Camaradou, Amy Chong, Felicity Jeyes, Karen L. Matthews, Patricia Moore, Jane Ormerod, Gary Price, Michael Saint-Cricq, David Stanton, Anita Walker, Melanie J. Calvert
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-10 (2024)
Abstract Background Patients, their family members and caregivers have firsthand experiences of living with or supporting someone living with a disease or medical condition. This knowledge by experience cannot be replaced by the knowledge acquired by
Externí odkaz:
https://doaj.org/article/676f8d0e9a844e78a56f07789d3af488
Autor:
Zoë Vowles, Danielle C. Ashworth, Rebecca L. Barron, Frances Conti-Ramsden, Hannah Wilson, Lisa Leighton, Louise Wall, Cherrelle Walter, Jenny Myers, Lucy C. Chappell
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-13 (2024)
Abstract Background Both pregnant women and those with multiple long-term conditions are under-served groups in clinical research. Informing and improving research through patient and public involvement, including pregnant women with two or more long
Externí odkaz:
https://doaj.org/article/04c44c7e3e6c462a826827786c490aff
Autor:
Muram El-Nayir, Rohan Wijesurendra, David Preiss, Marion Mafham, Leandros Tsiotos, Sadman Islam, Anne Whitehouse, Sophia Wilkinson, Hannah Freeman, Ryonfa Lee, Wojciech Brudlo, Genna Bobby, Bryony Jenkins, Robert Humphrey, Amy Mallorie, Andrew Toal, Elnora C. Barker, Dianna Moylan, Graeme Thomson, Firoza Davies, Hameed Khan, Ian Allotey, Susan Dickie, John Roberts
Publikováno v:
Trials, Vol 25, Iss 1, Pp 1-10 (2024)
Abstract Introduction ASCEND PLUS is a randomised controlled trial assessing the effects of oral semaglutide on the primary prevention of cardiovascular events in around 20,000 individuals with type 2 diabetes in the UK. The trial’s innovative desi
Externí odkaz:
https://doaj.org/article/b74ceea0031f4a2bb283e5bb323fb6bc
Autor:
Astrid Janssens, Danielle Drachmann, Kristy Barnes-Cullen, Austin Carrigg, Henrik Thybo Christesen, Becky Futers, Yvette Ollada Lavery, Tiffany Palms, Jacob Sten Petersen, Pratik Shah, Paul Thornton, Joseph Wolfsdorf
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-15 (2024)
Abstract Background In rare diseases, limited access to services and rare disease experts may force families to act as medical advocates for their child; they can volunteer to support clinician-initiated research or initiate and lead research themsel
Externí odkaz:
https://doaj.org/article/f8f4cef7cbb940a5b123b0b6e96f438d
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-8 (2024)
Abstract Although including public contributors as members of research teams is becoming common, there are few reflections on how they have been incorporated, and almost none of these reflections are co-produced with public contributors. This comment
Externí odkaz:
https://doaj.org/article/87ddc56adb8d413ba4ec4a4ed41b744c
Autor:
Geraldine O'Callaghan, Martin Fahy, Patricia Hall, Deirdre McCartan, Peter Langhorne, Rose Galvin, Frances Horgan
Publikováno v:
Health Expectations, Vol 27, Iss 5, Pp n/a-n/a (2024)
ABSTRACT Background People with stroke and their families face numerous challenges as they leave hospital to return home, often experiencing multifaceted unmet needs and feelings of abandonment. The essential elements of an intervention intended to s
Externí odkaz:
https://doaj.org/article/e5aab31c032340e7bee9d51c2e6b8d0e
Autor:
Free Coulston, Alicia Spittle, Cassie McDonald, Rachel Toovey, Kate L. Cameron, Kimberley Attard, Loni Binstock, Isaac Fletcher, Adie Delaney, Tayla Murphy, Caroline Keating, Kath Sellick
Publikováno v:
Health Expectations, Vol 27, Iss 4, Pp n/a-n/a (2024)
ABSTRACT Introduction Co‐design in health research involves patient and public involvement and engagement (PPIE) in intervention or service design. Traditionally, co‐design is undertaken in‐person; however, exploring online delivery is warrante
Externí odkaz:
https://doaj.org/article/68db29d2d5f544b89ff3530076fdc4bf
Autor:
Liz Forbat, Aisha Macgregor, Karen Spilsbury, Brendan McCormack, Alasdair Rutherford, Barbara Hanratty, Jo Hockley, Lisa Davison, Margaret Ogden, Irene Soulsby, Maisie McKenzie
Publikováno v:
Health and Social Care Delivery Research, Vol 12, Iss 19 (2024)
Background Care home residents often lack access to end-of-life care from specialist palliative care providers. Palliative Care Needs Rounds, developed and tested in Australia, is a novel approach to addressing this. Objective To co-design and implem
Externí odkaz:
https://doaj.org/article/590213b17e3b4f7ebcebd36dc45e8fe5
Autor:
Liesa J. Weiler‐Wichtl, Carina Schneider, Hannah Gsell, Anna‐Maria Maletzky, Anita Kienesberger, Claas Röhl, Albina Bocolli, Johannes Gojo, Rita Hansl, Anna Zettl, Maximilian Hopfgartner, Ulrike Leiss
Publikováno v:
Cancer Reports, Vol 7, Iss 5, Pp n/a-n/a (2024)
Abstract Background Patient and public involvement and engagement (PPIE) in healthcare research is crucial for effectively addressing patients' needs and setting appropriate research priorities. However, there is a lack of awareness and adequate meth
Externí odkaz:
https://doaj.org/article/8b0bf19689a94ca39a038a3ad49d7787