Zobrazeno 1 - 10
of 102
pro vyhledávání: '"managed access"'
Autor:
Quaglino P, Ascierto PA, Consoli F, Queirolo P, Spagnolo F, Morelli MF, Berardi R, Chiarion-Sileni V, Tucci M, Troiani T, Melotti B, Rossi E, Mandala M, Rinaldi G, Marcon IG, Pizzuti M, Del Vecchio M
Publikováno v:
Cancer Management and Research, Vol Volume 15, Pp 1271-1281 (2023)
Pietro Quaglino,1 Paolo A Ascierto,2 Francesca Consoli,3 Paola Queirolo,4 Francesco Spagnolo,5 Maria Francesca Morelli,6 Rossana Berardi,7 Vanna Chiarion-Sileni,8 Marco Tucci,9 Teresa Troiani,10 Barbara Melotti,11 Ernesto Rossi,12 Mario Mandala,13 Ga
Externí odkaz:
https://doaj.org/article/61e573f959ce4c9193d56a436410e730
Publikováno v:
Blockchain: Research and Applications, Vol 4, Iss 2, Pp 100126- (2023)
User-centric data sharing is essential to encourage citizens' active participation in the digital economy. One key to smart cities, a form of the digital economy, is the promotion of public use of citizen data. Nevertheless, it is not easy to utilize
Externí odkaz:
https://doaj.org/article/ae6fa00fff064f0ca1b728fd81996869
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-15 (2022)
Abstract Background Cerliponase alfa, an enzyme replacement therapy for neuronal ceroid lipofuscinosis type 2 (CLN2), is currently available in England through a managed access agreement (MAA). It is administered every 2 weeks via an intracerebrovent
Externí odkaz:
https://doaj.org/article/1ac32db670a249a1b402ff17c6407d6d
Publikováno v:
Frontiers in Pharmacology, Vol 13 (2022)
Compassionate Use (CU)/Managed Access programs provide access to locally unapproved medicines. As these programs become more global and involve a broader range of products, determining whether patients derive benefit from treatment could provide insi
Externí odkaz:
https://doaj.org/article/94f719b17d4942d182470e8cec356a19
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Abstract Managed access agreements provide a crucial mechanism whereby real-world data can be collected systematically to reduce uncertainty around available clinical and economic data, whilst providing the opportunity to identify patient sub-populat
Externí odkaz:
https://doaj.org/article/346bdaa5be3a4397b8221a60dc4b23eb
Autor:
Maureen Cleary, James Davison, Rachel Gould, Tarekegn Geberhiwot, Derralynn Hughes, Jean Mercer, Alexandra Morrison, Elaine Murphy, Saikat Santra, James Jarrett, Swati Mukherjee, Karolina M. Stepien
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-12 (2021)
Abstract Background We present baseline characteristics and follow-up data of a Managed Access Agreement (MAA), including patients with mucopolysaccharidosis IVA (MPS IVA) receiving elosulfase alfa enzyme replacement therapy (ERT) in England on a con
Externí odkaz:
https://doaj.org/article/f387368635b84fd3b2bca84b04dbd10b
Autor:
Kate F. Hurley
Publikováno v:
Frontiers in Veterinary Science, Vol 9 (2022)
The historical norm for many animal shelters has been to admit animals on an unscheduled basis, without prior assessment of animal or client need or regard to the shelter's ability to deliver humane care or ensure appropriate outcomes. This approach
Externí odkaz:
https://doaj.org/article/3ed9792afa2e4469ba18a0430fb77e22
Akademický článek
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Akademický článek
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Publikováno v:
Sustainability; Volume 15; Issue 13; Pages: 10035
Over the past decade, many national park units in the United States broke visitation records. Arches National Park (UT, USA) is no exception. Between 2011 and 2021, visitation increased 74%. As part of considering management options to address the is
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=multidiscipl::6a381b4d43b93617bb92bccf69bbd2c1