A Community-Driven Framework to Prioritize the Use of Donated Human Biological Materials in the Context of HIV Cure-Related Research at the End of Life

Autor: Karine Dube, Thomas J. Villa, Jeff Taylor, Andy Kaytes, David J. Moore, Susan J. Little, Antoine Chaillon, Davey M. Smith, Sara Gianella

Publikováno v: Pathogens and Immunity, Vol 8, Iss 1 (2023)

Initiated in 2017 after extensive community engagement, the Last Gift program enrolls altruistic volunteers willing to donate their cells and tissues at the end of life to allow studies on HIV reservoir dynamics across anatomical sites. As the Last G

Externí odkaz: https://doaj.org/article/e3066e80130c4a0d8f9f4cd7f7df38da

Collection and use of human materials during TB clinical research; a review of practices

Autor: Joseph Ochieng, Betty Kwagala, Nelson Sewankambo

Publikováno v: BMC Medical Ethics, Vol 23, Iss 1, Pp 1-6 (2022)

Abstract Background Human biological materials are usually stored for possible future use in research because they preserve valuable biological information, save time and resources, which would have been spent on collection of fresh samples. However,

Externí odkaz: https://doaj.org/article/5101c15329cf4bcaa03be4dbf31175b7

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Past, Present, and Future of Informed Consent in Pain and Genomics Research: Challenges Facing Global Medical Community

Autor: Christian, Compagnone, Michael E, Schatman, Richard L, Rauck, Jan, Van Zundert, Monika, Kraus, Dragan, Primorac, Frances, Williams, Massimo, Allegri, Gloria, Saccani Jordi, Guido, Fanelli, M, Black

Publikováno v: Pain Pract. 17, 8-15 (2017)
Compagnone, C, Schatman, M E, Rauck, R L, Van Zundert, J, Kraus, M, Primorac, D, Williams, F, Allegri, M, Saccani Jordi, G & Fanelli, G 2016, ' Past, Present, and Future of Informed Consent in Pain and Genomics Research : Challenges Facing Global Medical Community ', Pain practice : the official journal of World Institute of Pain . https://doi.org/10.1111/papr.12485

In recent decades, there has been a revision of the role of institutional review boards with the intention of protecting human subjects from harm and exploitation in research. Informed consent aims to protect the subject by explaining all of the bene

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::217b4267e446d20c53fa14405da3bd2d
https://doi.org/10.1111/papr.12485.

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