Zobrazeno 1 - 10
of 1 656
pro vyhledávání: '"genomic research"'
Publikováno v:
BMC Medical Ethics, Vol 25, Iss 1, Pp 1-20 (2024)
Abstract Introduction Given the growing number of Alzheimer’s Disease and Alzheimer’s Disease Related Dementias (AD/ADRD) genomics research projects and the vulnerabilities of study participants, it is critical to evaluate the literature on the e
Externí odkaz:
https://doaj.org/article/4fefedb090bc45fe9fad0fba733bd36e
Autor:
Fiona Russo, Isabella Sherburn, Keri Finlay, Jack Nunn, Monica Ferrie, Anne McKenzie, Sean Murray, John Cannings, Greg Pratt, Tiffany Boughtwood
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-12 (2024)
Abstract Background There is increasing global support from governments and other funding bodies for community involvement in research, alongside a scientific and moral imperative for responsible and ethical research practice. Ninety per cent of Aust
Externí odkaz:
https://doaj.org/article/17f896ba1bae44b5b09a2604d4822a79
Publikováno v:
Scientific Reports, Vol 14, Iss 1, Pp 1-8 (2024)
Abstract One of the most common terms that is used to describe entities responsible for sharing genomic data for research purposes is ‘genomic research consortium’. However, there is a lack of clarity around the language used by consortia to desc
Externí odkaz:
https://doaj.org/article/b15f4917a6684888a8de3e88c6fbc222
Publikováno v:
Правовое государство: теория и практика, Vol 20, Iss 2(76), Pp 154-162 (2024)
The concept of informed consent seems to be important in scientific research involving medical interventions and in clinical practice. This makes the study of this legal institution timely and relevant. Purpose: based on the results of the analysis
Externí odkaz:
https://doaj.org/article/bf45c614667a4edf97954d92d6095fd7
Publikováno v:
BMC Medical Ethics, Vol 24, Iss 1, Pp 1-22 (2023)
Abstract Background Biobanking and genomic research requires collection and storage of human tissue from study participants. From participants’ perspectives within the African context, this can be associated with fears and misgivings due to a myria
Externí odkaz:
https://doaj.org/article/4201d71edcf44416ad68de24a44e2a0c
Autor:
Basova, A. V.
Publikováno v:
Известия Саратовского университета. Новая серия: Серия «Экономика. Управление. Право», Vol 23, Iss 2, Pp 227-234 (2023)
Introduction. In modern conditions of rapid development of genomics, the formation of a database of genetic testing of the Russian population, the legislative framework that effectively protects human rights and legitimate interests is only being for
Externí odkaz:
https://doaj.org/article/817832162f904d7bb75e18edcd2ba789
Publikováno v:
Frontiers in Research Metrics and Analytics, Vol 8 (2023)
IntroductionIndigenous Peoples are increasingly exerting governance and oversight over genomic research with citizens of their nations, raising questions about how best to enforce research regulation between American Indian, Alaska Native, and Native
Externí odkaz:
https://doaj.org/article/6970acc92f024bb1a09228aa18743d42
Autor:
Faith Kabata, Donrich Thaldar
Publikováno v:
Frontiers in Genetics, Vol 14 (2023)
While debate on the international regulation of human genomic research remains unsettled, the Universal Declaration on the Human Genome and Human Rights, 1997 qualifies the human genome as “heritage of humankind” in a symbolic sense. Using docume
Externí odkaz:
https://doaj.org/article/9af189f8e84f49119ac40e68831a7c72
Autor:
Mary Bitta, Dorcas Kamuya, Dorothy Chepkirui, Rosemary Musesengwa, Eli Harris, Patricia Kipkemoi
Publikováno v:
Wellcome Open Research, Vol 8 (2023)
Background: Psychiatric genomic research is a growing field of research in Africa that is looking at epigenetics of psychiatric disorders; within which a specific focus is neurodevelopmental disorders including intellectual disability (ID). Conductin
Externí odkaz:
https://doaj.org/article/1f62324191e647fcb524ae47adc56c90
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