Establish global standards to protect childhood cancer genomics data.

Autor: Yang L, Ding G

Publikováno v: Nature [Nature] 2024 Oct; Vol. 634 (8033), pp. 298.

Balancing the safeguarding of privacy and data sharing: perceptions of genomic professionals on patient genomic data ownership in Australia.

Autor: Malakar Y; Responsible Innovation Future Science Platform, Commonwealth Scientific and Industrial Research Organisation (CSIRO), Brisbane, Queensland, Australia. Yuwan.Malakar@csiro.au., Lacey J; Responsible Innovation Future Science Platform, Commonwealth Scientific and Industrial Research Organisation (CSIRO), Brisbane, Queensland, Australia., Twine NA; Transformational Bioinformatics, Commonwealth Scientific and Industrial Research Organisation (CSIRO), Sydney, Australia.; Applied BioSciences, Faculty of Science and Engineering, Macquarie University, Macquarie Park, Australia., McCrea R; Responsible Innovation Future Science Platform, Commonwealth Scientific and Industrial Research Organisation (CSIRO), Brisbane, Queensland, Australia., Bauer DC; Transformational Bioinformatics, Commonwealth Scientific and Industrial Research Organisation (CSIRO), Sydney, Australia.; Applied BioSciences, Faculty of Science and Engineering, Macquarie University, Macquarie Park, Australia.; Department of Biomedical Sciences, Faculty of Medicine and Health Science, Macquarie University, Macquarie Park, Australia.

Publikováno v: European journal of human genetics : EJHG [Eur J Hum Genet] 2024 May; Vol. 32 (5), pp. 506-512. Date of Electronic Publication: 2023 Jan 11.

IGG in the trenches: Results of an in-depth interview study on the practice, politics, and future of investigative genetic genealogy.

Autor: Guerrini CJ; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA. Electronic address: guerrini@bcm.edu., Bash Brooks W; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA., Robinson JO; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA., Fullerton SM; Department of Bioethics and Humanities, University of Washington School of Medicine, Seattle, WA, USA., Zoorob E; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA., McGuire AL; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.

Publikováno v: Forensic science international [Forensic Sci Int] 2024 Mar; Vol. 356, pp. 111946. Date of Electronic Publication: 2024 Feb 01.

Ethical, legal, and social issues related to genetics and genomics in cancer: A scoping review and narrative synthesis.

Autor: Smit AK; The Daffodil Centre, The University of Sydney, a joint venture with Cancer Council NSW, Sydney, NSW, Australia; The University of Sydney, Faculty of Medicine and Health, Sydney School of Public Health, Sydney, NSW, Australia., Gokoolparsadh A; The University of Sydney, Faculty of Medicine and Health, Sydney School of Public Health, Sydney Health Ethics, Sydney, NSW, Australia., McWhirter R; ANU College of Law, Australian National University, Canberra, ACT, Australia., Newett L; National Centre for Indigenous Genomics, Australian National University, Canberra, ACT Australia., Milch V; Cancer Australia, Surry Hills, NSW Australia; Caring Futures Institute, Flinders University, Adelaide, Australia., Hermes A; National Centre for Indigenous Genomics, Australian National University, Canberra, ACT Australia., McInerney-Leo A; Frazer Institute, The University of Queensland, Dermatology Research Centre, Brisbane, QLD Australia., Newson AJ; The University of Sydney, Faculty of Medicine and Health, Sydney School of Public Health, Sydney Health Ethics, Sydney, NSW, Australia. Electronic address: ainsley.newson@sydney.edu.au.

Publikováno v: Genetics in medicine : official journal of the American College of Medical Genetics [Genet Med] 2024 Dec; Vol. 26 (12), pp. 101270. Date of Electronic Publication: 2024 Sep 13.

Cascade genetic testing in hereditary cancer: exploring the boundaries of the Italian legal framework.

Autor: Varesco L; Unit of Hereditary Cancer, IRCCS Ospedale Policlinico San Martino, Genoa, Italy., Di Tano F; Department of Legal Studies, Alma Mater Studiorum, University of Bologna, Bologna, Italy.; Interdepartmental Centre for Research in the History, Philosophy, and Sociology of Law and in Computer Science and Law (CIRSFID), Alma Mater Studiorum, University of Bologna, Bologna, Italy., Monducci J; Interdepartmental Centre for Research in the History, Philosophy, and Sociology of Law and in Computer Science and Law (CIRSFID), Alma Mater Studiorum, University of Bologna, Bologna, Italy., Sciallero S; Medical Oncology Unit 1, IRCCS Ospedale Policlinico San Martino, Genoa, Italy., Turchetti D; Center for Studies on Hereditary Cancer, Department of Medical and Surgical Sciences, University of Bologna, Bologna, Italy.; Medical Genetics Unit, IRCCS Azienda Ospedaliero-Universitaria Di Bologna, Bologna, Italy., Bighin C; Medical Oncology Unit 2, IRCCS Ospedale Policlinico San Martino, Genoa, Italy., Buzzatti G; Medical Oncology Unit 2, IRCCS Ospedale Policlinico San Martino, Genoa, Italy., Giannubilo I; Medical Oncology Unit 2, IRCCS Ospedale Policlinico San Martino, Genoa, Italy., Trevisan L; Unit of Hereditary Cancer, IRCCS Ospedale Policlinico San Martino, Genoa, Italy., Battistuzzi L; Medical Oncology Unit 2, IRCCS Ospedale Policlinico San Martino, Genoa, Italy. linda.battistuzzi@unige.it.; Deparment of Informatics, Bioengineering, Robotics and Systems Engineering, University of Genoa, Genoa, Italy. linda.battistuzzi@unige.it.; IRCCS Ospedale Policlinico San Martino, Largo Rosanna Benzi 10, 16131, Genoa, Italy. linda.battistuzzi@unige.it.

Publikováno v: Familial cancer [Fam Cancer] 2024 Nov 20; Vol. 24 (1), pp. 9. Date of Electronic Publication: 2024 Nov 20.