Zobrazeno 1 - 10
of 139
pro vyhledávání: '"for the CARRA registry investigators"'
Publikováno v:
Pediatric Rheumatology Online Journal, Vol 22, Iss 1, Pp 1-8 (2024)
Abstract Background Temporomandibular joint (TMJ) involvement is an often underrecognized complication of juvenile idiopathic arthritis (JIA) that can cause decreased mandibular growth, altered facial morphology, and orofacial pain. It is estimated t
Externí odkaz:
https://doaj.org/article/e1eb80e9216e40c589e8955dc8edbb52
Autor:
Timothy Hahn, Carrie Daymont, Timothy Beukelman, Brandt Groh, Kimberly Hays, Catherine April Bingham, Lisabeth Scalzi, for the CARRA Registry investigators
Publikováno v:
Pediatric Rheumatology Online Journal, Vol 20, Iss 1, Pp 1-8 (2022)
Abstract Background Children with juvenile idiopathic arthritis (JIA) who achieve a drug free remission often experience a flare of their disease requiring either intraarticular steroids (IAS) or systemic treatment with disease modifying anti-rheumat
Externí odkaz:
https://doaj.org/article/d3a505141e024fb1af351ed11952c913
Publikováno v:
ACR Open Rheumatology, Vol 4, Iss 9, Pp 825-831 (2022)
Objective Inactive disease is the treatment goal for juvenile idiopathic arthritis (JIA), but there are multiple measures for disease activity. The objective was to compare individuals with JIA who meet different definitions for inactive disease. Met
Externí odkaz:
https://doaj.org/article/74e13b749b7a4bfdb946e63e636e3a41
Autor:
William Daniel Soulsby, Nayimisha Balmuri, Victoria Cooley, Linda M. Gerber, Erica Lawson, Susan Goodman, Karen Onel, Bella Mehta, for the CARRA Registry Investigators
Publikováno v:
Pediatric Rheumatology Online Journal, Vol 20, Iss 1, Pp 1-13 (2022)
Abstract Background Social determinants of health (SDH) greatly influence outcomes during the first year of treatment in rheumatoid arthritis, a disease similar to polyarticular juvenile idiopathic arthritis (pJIA). We investigated the correlation of
Externí odkaz:
https://doaj.org/article/b02760b3691349f09dc58d9afda7a74e
Autor:
Nayimisha Balmuri, William Daniel Soulsby, Victoria Cooley, Linda Gerber, Erica Lawson, Susan Goodman, Karen Onel, Bella Mehta, for the CARRA Registry Investigators,
Publikováno v:
Pediatric Rheumatology Online Journal, Vol 19, Iss 1, Pp 1-9 (2021)
Abstract Background The impact of social determinants of health on children with polyarticular juvenile idiopathic arthritis (pJIA) is poorly understood. Prompt initiation of treatment for pJIA is important to prevent disease morbidity; however, a po
Externí odkaz:
https://doaj.org/article/b71c0767be554429bf019179e3ee7d5f
Autor:
Timothy Beukelman, Aimee Lougee, Roland A. Matsouaka, David Collier, Dax G. Rumsey, Jennifer Schenfeld, Scott Stryker, Marinka Twilt, Yukiko Kimura, for the CARRA Registry Investigators
Publikováno v:
Pediatric Rheumatology Online Journal, Vol 19, Iss 1, Pp 1-10 (2021)
Abstract Background We aimed to characterize etanercept (ETN) use in juvenile idiopathic arthritis (JIA) patients enrolled in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry. Methods The CARRA Registry is a convenience coh
Externí odkaz:
https://doaj.org/article/d056c24033314e938b2fb3abfb0b215a
Publikováno v:
Pediatric Rheumatology Online Journal, Vol 17, Iss 1, Pp 1-7 (2019)
Abstract Background Severe pain and impairments in functioning are commonly reported for youth with juvenile fibromyalgia. The prevalence and impact of pain in other diseases commonly managed in pediatric rheumatology comparatively have been rarely s
Externí odkaz:
https://doaj.org/article/73c3565da1e0400d9df0cd080c317f27
Autor:
Jenifer E. Weiss, Kenneth N. Schikler, Alexis D. Boneparth, Mark Connelly, For the CARRA Registry Investigators
Publikováno v:
Pediatric Rheumatology Online Journal, Vol 17, Iss 1, Pp 1-8 (2019)
Abstract Background To describe the demographic, clinical, and treatment characteristics of youth diagnosed with juvenile primary fibromyalgia syndrome (JPFS) who are seen in pediatric rheumatology clinics. Methods Information on demographics, sympto
Externí odkaz:
https://doaj.org/article/ec40624cb465418b93a9427b81d1f0ce
Autor:
Suzanne C. Li, Robert C. Fuhlbrigge, Ronald M. Laxer, Elena Pope, Maria F. Ibarra, Katie Stewart, Thomas Mason, Mara L. Becker, Sandy Hong, Fatma Dedeoglu, Kathryn S. Torok, C. Egla Rabinovich, Polly J. Ferguson, Marilynn Punaro, Brian M. Feldman, Tracy Andrews, Gloria C. Higgins, For the CARRA Registry Investigators
Publikováno v:
Pediatric Rheumatology Online Journal, Vol 17, Iss 1, Pp 1-12 (2019)
Abstract Background We designed and initiated a pilot comparative effectiveness study for juvenile localized scleroderma (jLS), for which there is limited evidence on best therapy. We evaluated the process we used, in relation to the specific protoco
Externí odkaz:
https://doaj.org/article/39b9f2c631c64e98abbb62932f03f155
Autor:
Jennifer C Cooper, Kelly Rouster-Stevens, Tracey B Wright, Joyce J Hsu, Marisa S Klein-Gitelman, Stacy P Ardoin, Laura E Schanberg, Hermine I Brunner, B Anne Eberhard, Linda Wagner-Weiner, Jay Mehta, Kathleen Haines, Deborah K McCurdy, Thomas A Phillips, Zhen Huang, Emily von Scheven, for the CARRA registry investigators
Publikováno v:
Pediatric Rheumatology Online Journal, Vol 16, Iss 1, Pp 1-11 (2018)
Abstract Background To reduce treatment variability and facilitate comparative effectiveness studies, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) published consensus treatment plans (CTPs) including one for juvenile proliferati
Externí odkaz:
https://doaj.org/article/78a3310628e040f7a9a41bc788558d8a