How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?

Autor: Spierings J; Department of Rheumatology and Clinical Immunology, University Medical Center Utrecht, Utrecht., van den Ende CHM; Department of Rheumatology, Sint Maartenskliniek.; Department of Rheumatology, Radboud University Medical Center, Nijmegen., Schriemer RM; NVLE, Dutch patient organization for systemic autoimmune diseases, Utrecht., Bernelot Moens HJ; Department of Rheumatology, Ziekenhuisgroep Twente, Hengelo., van der Bijl EA; Department of Rheumatology, Isala, Zwolle, The Netherlands., Bonte-Mineur F; Department of Rheumatology, Maasstad ziekenhuis, Rotterdam., de Buck MPD; Department of Rheumatology, Haaglanden, The Hague., de Kanter MAE; Department of Rheumatology, Elisabeth-TweeSteden Ziekenhuis, Tilburg., Knaapen-Hans HKA; Department of Rheumatology, Radboud University Medical Center, Nijmegen., van Laar JM; Department of Rheumatology and Clinical Immunology, University Medical Center Utrecht, Utrecht., Mulder UDJ; Department of Internal Medicine, division Vascular Medicine, University of Groningen, Groningen., Potjewijd J; Department of Clinical immunology, Maastricht University Medical Center+, Maastricht., de Pundert LAJ; Department of Physical Therapy, Haga Ziekenhuis, The Hague., Schoonbrood THM; Department of Rheumatology, Maastricht University Medical Center+, Maastricht., Schouffoer AA; Department of Rheumatology, Haga Ziekenhuis, The Hague., Stel AJ; Department of Rheumatology, University Medical Center Groningen, Groningen., Vercoutere W; Department of Rheumatology, Zuyderland Medical Center, Heerlen., Voskuyl AE; Amsterdam Rheumatology and Immunology Center, Amsterdam UMC, loc. VUMC, Amsterdam., de Vries-Bouwstra JK; Department of Rheumatology, Leiden University Medical Centre, Leiden, The Netherlands., Vonk MC; Department of Rheumatology, Radboud University Medical Center, Nijmegen.

Publikováno v: Rheumatology (Oxford, England) [Rheumatology (Oxford)] 2020 Jun 01; Vol. 59 (6), pp. 1226-1232.