Factors affecting quality of life of children and adolescents with anorectal malformations or Hirschsprung disease

Autor: Esther Hartman, David C. van der Zee, Marina van Silfhout-Bezemer, L. W. Ernest van Heurn, Zacharias J. de Langen, Mirjam A. G. Sprangers, Nic Looyaard, Paul N.M.A. Rieu, Marianne J. G. Hanneman, Gerard C. Madern, Daniel C. Aronson, Frans J. Oort

Publikováno v: Journal of Pediatric Gastroenterology and Nutrition, 47, 4, pp. 463-71
Journal of Pediatric Gastroenterology and Nutrition, 47, 463-71
Journal of Pediatric Gastroenterology and Nutrition, 47(4), 463-471. Lippincott Williams and Wilkins
Hartman, E E, Oort, F J, Sprangers, M A G, Hanneman, M J G, van Heurn, L W E, de Langen, Z J, Madern, G C, Rieu, P N M A, van der Zee, D C, Looyaard, N, van Silfhout-Bezemer, M & Aronson, D C 2008, ' Factors affecting quality of life of children and adolescents with anorectal malformations or Hirschsprung disease ', Journal of Pediatric Gastroenterology and Nutrition, vol. 47, no. 4, pp. 463-471 . https://doi.org/10.1097/MPG.0b013e31815ce545
Journal of pediatric gastroenterology and nutrition, 47(4), 463-471. Lippincott Williams & Wilkins
Scopus-Elsevier
Journal of Pediatric Gastroenterology and Nutrition, 47(4), 463-71. LIPPINCOTT WILLIAMS & WILKINS
Journal of pediatric gastroenterology and nutrition, 47(5), 463-471. Lippincott Williams and Wilkins

Contains fulltext : 70263.pdf (Publisher’s version ) (Closed access) OBJECTIVES: First, to compare the quality of life (QL) and perceived self-competence of children and adolescents with anorectal malformations or Hirschsprung disease with that of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2dc51fbe38b4d847d905f18f8f429f0f
https://hdl.handle.net/11245/1.299047

Explaining change in quality of life of children and adolescents with anorectal malformations or Hirschsprung disease

Autor: Daniel C. Aronson, Ernest van Heurn, Gerard C. Madern, Nic Looyaard, Mirjam A. G. Sprangers, Marianne J. G. Hanneman, Esther Hartman, Paul N.M.A. Rieu, David C. van der Zee, Marina van Silfhout-Bezemer, Frans J. Oort, Zacharias J. de Langen

Publikováno v: Pediatrics, 119(2), e374-e383. American Academy of Pediatrics
Pediatrics, 119(2), E374-E383. AMER ACAD PEDIATRICS
Pediatrics (Evanston), 119, 2, pp. e374-83
Pediatrics (Evanston), 119, e374-83

OBJECTIVES. The purpose of this work was to examine changes in quality of life, disease-specific functioning, and psychosocial competencies of children and adolescents (8–16 years of age) with anorectal malformations or Hirschsprung disease and to

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::67e9973757545242e0b9dc3b83373116
https://doi.org/10.1542/peds.2006-0212

Hirschsprung's disease: healthcare meets the needs

Autor: Gerard C. Madern, Mirjam A. G. Sprangers, Paul N.M.A. Rieu, Mechteld R. M. Visser, Daniel C. Aronson, Zacharias J. de Langen, Marianne J. G. Hanneman, Esther Hartman, David C. van der Zee, Marina van Silfhout-Bezemer, L. W. Ernest van Heurn, Frans J. Oort

Publikováno v: Journal of Pediatric Surgery, 41(8), 1420-1424. W.B. Saunders
Journal of Pediatric Surgery, 41, 1420-4
Journal of pediatric surgery, 41(8), 1420-1424. W.B. Saunders Ltd
Journal of Pediatric Surgery, 41, 8, pp. 1420-4
Journal of Pediatric Surgery, 41(8), 1420-1424. W B Saunders Co-Elsevier Inc
Journal of Pediatric Surgery, 41(8), 1420-1424. W B SAUNDERS CO-ELSEVIER INC

Objective: The objective of this study was to examine the types of healthcare services used by children, adolescents, and adults with Hirschsprung Disease (HD) in relation to the severity of the initial defect (mild, severe), whether additional care

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::118c0c4a5e4b38acaff286cc7680cf37
https://doi.org/10.1016/j.jpedsurg.2006.04.018

Anorectal Malformations: Does Healthcare Meet the Needs?

Autor: Gerard C. Madern, Frans J. Oort, Mirjam A. G. Sprangers, Nic Looyaard, Paul N.M.A. Rieu, Zacharias J. de Langen, Marianne J. G. Hanneman, Mechteld R. M. Visser, Esther Hartman, David C. van der Zee, Daniel C. Aronson, L. W. Ernest van Heurn

Publikováno v: Journal of Pediatric Gastroenterology and Nutrition, 41, 210-5
Journal of Pediatric Gastroenterology and Nutrition, 41, 2, pp. 210-5
Journal of pediatric gastroenterology and nutrition, 41(2), 210-215. Lippincott Williams and Wilkins
Journal of Pediatric Gastroenterology and Nutrition, 41(2), 210-215. LIPPINCOTT WILLIAMS & WILKINS

Contains fulltext : 48562.pdf (Publisher’s version ) (Closed access) OBJECTIVES: The first aim was to identify the types of healthcare services used by children, adolescents, and adults with anorectal malformation (ARM) in relation to the severity

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::df1fb7ce2b88b208915db3a2a36e6de7
https://doi.org/10.1097/01.mpg.0000168993.21557.5d

Mortality of biliary atresia in children not undergoing liver transplantation in the Netherlands

Autor: Willemien, de Vries, Zacharias J, de Langen, Daniel C, Aronson, Jan B F, Hulscher, Paul M J G, Peeters, Pauline, Jansen-Kalma, Henkjan J, Verkade, D C, van der Zee

Publikováno v: Pediatric transplantation. 15(2)

In order to further improve the outcome of BA, we characterized the mortality of BA patients who did not undergo OLT in the Netherlands, and compared our results with international data. For this purpose, we analyzed the causes of mortality of non-tr

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::128f5738192ba608e3e096476163a11e
https://pubmed.ncbi.nlm.nih.gov/21199212