Access to transplantation for persons with intellectual disability: Strategies for nondiscrimination

Autor: Paulo N. Martins, Mahwish U. Ahmad, Aaron Wightman, William L. Freeman, Robert M. Veatch, Ashton Chen, Stephanie Little, Keren Ladin, Andrew Flescher

Publikováno v: American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant SurgeonsREFERENCES. 20(8)

Disqualifying patients with intellectual disabilities (ID) from transplantation has received growing attention from the media, state legislatures, the Office of Civil Rights, and recently the National Council on Disability, as well as internationally

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::96e4370d6ee6ea4ad2e028903c8f6429
https://pubmed.ncbi.nlm.nih.gov/31873978

Ethics of Health Research in Communities: Perspectives From the Southwestern United States

Autor: Gilbert Quintero, Cathleen E. Willging, Robert L. Williams, William L. Freeman, Summers Kalishman, Andrew L. Sussman

Publikováno v: The Annals of Family Medicine. 8:433-439

PURPOSE: The increasing attention paid to community-based research highlights the question of whether human research protections focused on the individual are adequate to safeguard communities. We conducted a study to explore how community members pe

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::31da97813e45688e52648e671a8a87aa
https://doi.org/10.1370/afm.1138

Chapter 11—Ethics of Biospecimen Research

Autor: William L. Freeman, Francine C. Gachupin

Publikováno v: Conducting Health Research with Native American Communities ISBN: 9780875532028
Conducting Health Research with Native American Communities

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::e2043183078066ae7d45f455918deb55
https://doi.org/10.2105/9780875532028ch11

The Role of Community Review in Evaluating the Risks of Human Genetic Variation Research

Autor: Morris W. Foster, Thomas H. Carter, Richard R. Sharp, Deborah Bernsten, William L. Freeman, Michelle Chino

Publikováno v: The American Journal of Human Genetics. 64:1719-1727

Summary The practicality and moral value of community review of human genetic research has become a focus of debate. Examples from two Native American communities are used to address four aspects of that debate: (1) the value of community review in l

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::445dce17bce670fa3f121b4c19744da8
https://doi.org/10.1086/302415

Diabetic Complications Among American Indians of Washington, Oregon, and Idaho: Prevalence of retinopathy, end-stage renal disease, and amputations

Autor: William L. Freeman, Gwendolyn M Hosey

Publikováno v: Diabetes Care. 16:357-360

OBJECTIVE— To estimate the prevalence of severe diabetic complications. RESEARCH DESIGN AND METHODS— We surveyed the data systems of the IHS and local care providers to identify all AI/AN people with any of three diabetic complications: retinopat

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ca7d9050011bf735f712130636bc4cc4
https://doi.org/10.2337/diacare.16.1.357