Zobrazeno 1 - 10
of 13
pro vyhledávání: '"Westerly Luth"'
Publikováno v:
BMC Medical Research Methodology, Vol 23, Iss 1, Pp 1-18 (2023)
Abstract Background People with amyotrophic lateral sclerosis (ALS) face disability- and travel-related barriers to research participation. We investigate the usefulness and acceptability of asynchronous, online focus groups (AOFGs) for research invo
Externí odkaz:
https://doaj.org/article/51d6eeda43cf497cabfdd72fc573e8a5
Publikováno v:
BMC Neurology, Vol 22, Iss 1, Pp 1-13 (2022)
Abstract Background People with amyotrophic lateral sclerosis (ALS) are at high risk for severe outcomes from Covid-19 infection. Researchers exploring ALS and Covid-19 have focused primarily on system response and adaptation. Using Protection Motiva
Externí odkaz:
https://doaj.org/article/c7a9794d9fc24f9999e733472ca543f9
Publikováno v:
Frontiers in Neurology, Vol 12 (2021)
Background: Communication about end of life, including advance care planning, life-sustaining therapies, palliative care, and end-of-life options, is critical for the clinical management of amyotrophic lateral sclerosis patients. The empirical eviden
Externí odkaz:
https://doaj.org/article/5be156d0cfb841d4a58217c06bff46ba
Publikováno v:
PLoS ONE, Vol 8, Iss 5, p e64070 (2013)
ObjectivesEffective communication by public health agencies during a pandemic promotes the adoption of recommended health behaviours. However, more information is not always the solution. Rather, attention must be paid to how information is communica
Externí odkaz:
https://doaj.org/article/efecf55c889441ab81307269508a072e
Publikováno v:
Amyotrophic lateral sclerosisfrontotemporal degeneration.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::edb608fe7828c965faae5e8958aa2fe0
https://pubmed.ncbi.nlm.nih.gov/36111949
https://pubmed.ncbi.nlm.nih.gov/36111949
Publikováno v:
Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques. 48:496-503
Background:Amyotrophic lateral sclerosis (ALS) presents many transitions for persons/people with ALS (PwALS) and their caregivers. Transitions are passages from one life phase, condition, or status to another. We used qualitative methods to understan
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5f5291da1ee4828f31dcce610836a801
https://doi.org/10.1017/cjn.2020.240
https://doi.org/10.1017/cjn.2020.240
Autor:
Jill Van Damme, Ayse Kuspinar, Wendy Johnston, Colleen O’Connell, John Turnbull, Marvin Chum, Patricia Strachan, Westerly Luth, Shane McCullum, Nicole Peters, Joy MacDermid, Vanina Dal Bello-Haas
Publikováno v:
Amyotrophic lateral sclerosisfrontotemporal degeneration. 23(7-8)
Objective: The aim of this study was to refine the items of a preference-based amyotrophic lateral sclerosis health-related quality of life scale (PB-ALS HRQL scale) based on domains generated in a previous study. Methods: Survey methodology was used
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::96e69bfcfb4f94250884928c84176720
https://pubmed.ncbi.nlm.nih.gov/35147072
https://pubmed.ncbi.nlm.nih.gov/35147072
Publikováno v:
BMC neurology. 22(1)
Background People with amyotrophic lateral sclerosis (ALS) are at high risk for severe outcomes from Covid-19 infection. Researchers exploring ALS and Covid-19 have focused primarily on system response and adaptation. Using Protection Motivation Theo
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a2e5104a1b5dcbeccb3e045f73f49a94
https://pubmed.ncbi.nlm.nih.gov/35413805
https://pubmed.ncbi.nlm.nih.gov/35413805
Autor:
Wendy Johnston, Westerly Luth
Publikováno v:
Public Policy in ALS/MND Care ISBN: 9789811558399
The division of responsibilities between federal and provincial governments shapes the care of people with ALS in Canada. Federal policies affect people with ALS through approval of new therapies, research funding, caregiver benefits and legislation
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::c4abc6089458b53bd86a817c47490c93
https://doi.org/10.1007/978-981-15-5840-5_5
https://doi.org/10.1007/978-981-15-5840-5_5
Publikováno v:
Journal of Law and the Biosciences
Personalized medicine (PM) aims to harness a wave of ‘omics’ discoveries to facilitate research and discovery of targeted diagnostics and therapies and increase the efficiency of healthcare systems by predicting and treating individual predisposi
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5f4dbce526e54ef4e9087d9659bb9828
https://doi.org/10.1093/jlb/lsx030
https://doi.org/10.1093/jlb/lsx030