Die Relevanz von Endpunkten aus Perspektive der Betroffenen: Ergebnisse der Befragung von Patient*innen und von Mitgliedern der Leitlinienkommission im Rahmen der Entwicklung der GRADE-Leitlinie zur Diagnostik und Therapie des Analkarzinoms

Autor: Werner, RN, Gaskins, M, Dressler, C, Nast, A, Schaefer, C, Siegel, R, Aigner, F

Publikováno v: Who cares?-EbM und Transformation im Gesundheitswesen; 22. Jahrestagung des Deutschen Netzwerks Evidenzbasierte Medizin; 20210224-20210226; sine loco [digital]; DOC21ebmV-5-02 /20210223/

Hintergrund/Fragestellung: Eine standardisierte Methode zur Erhebung der Werte und Präferenzen von Patient*innen bei der Entwicklung von Leitlinien ist bisher nicht etabliert. Im Rahmen der Entwicklung der ersten deutschen evidenzbasierten Leitlinie

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::dd50635e15376f14ae43f92ef23a3567

EuroGuiderm guideline on lichen sclerosus-Treatment of lichen sclerosus.

Autor: Kirtschig G; Medbase Health Centre, Frauenfeld, Switzerland., Kinberger M; Division of Evidence-Based Medicine (dEBM), Department of Dermatology, Venereology and Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany., Kreuter A; Department of Dermatology, Venereology, and Allergology, HELIOS St. Elisabeth Hospital Oberhausen, Oberhausen, Germany., Simpson R; Centre of Evidence Based Dermatology, University of Nottingham, Nottingham, UK., Günthert A; Gynäkologisches Tumorzentrum St. Anna, Lucerne, Switzerland., van Hees C; Department of Dermatology, Erasmus University Medical Center, Rotterdam, The Netherlands., Becker K; Office for Paediatric Surgery, Bonn, Germany., Ramakers MJ; CenSeRe (Centre for Psychological, Relational, Sexual Health), Voorschoten, The Netherlands., Corazza M; Section of Dermatology and Infectious Diseases, Department of Medical Sciences, University of Ferrara, Ferrara, Italy., Müller S; Department of Dermatology, University Hospital Basel, Basel, Switzerland., von Seitzberg S; The Danish Lichen Sclerosus Association, Hørve, Denmark., Boffa MJ; Department of Dermatology, Mater Dei Hospital, Msida, Malta., Stein R; Center for Pediatric, Adolescent and Reconstructive Urology, Medical Faculty Mannheim, University of Medical Center Mannheim, Heidelberg University, Mannheim, Germany., Barbagli G; Centro Chirurgico Toscano, Arezzo, Italy., Chi CC; Department of Dermatology, Chang Gung Memorial Hospital, Linkou, Taoyuan, Taiwan.; College of Medicine, Chang Gung University, Taoyuan, Taiwan., Dauendorffer JN; Department of Dermatology, Centre for Genital and Sexually Transmitted Diseases, University Hospital Saint Louis, Paris, France., Fischer B; The Swiss Lichen Sclerosus Association, Switzerland/Verein Lichen Sclerosus e.V., Dottikon, Switzerland., Gaskins M; Division of Evidence-Based Medicine (dEBM), Department of Dermatology, Venereology and Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany., Hiltunen-Back E; Department of Dermatovenereology, Helsinki University Hospital, Helsinki, Finland., Höfinger A; The Swiss Lichen Sclerosus Association, Switzerland/Verein Lichen Sclerosus e.V., Dottikon, Switzerland., Köllmann NH; The Swiss Lichen Sclerosus Association, Switzerland/Verein Lichen Sclerosus e.V., Dottikon, Switzerland., Kühn H; The German Lichen Sclerosus Association, Hamburg, Germany., Larsen HK; Department of Dermatology and Venereology, Copenhagen University Hospital, Bispebjerg Hospital, Copenhagen, Denmark., Lazzeri M; Department of Urology, IRCCS Humanitas Research Hospital, Rozzano, MI, Italy., Mendling W; German Center for Infections in Gynecology and Obstetrics, Helios University Hospital Wuppertal-University Witten/Herdecke, Wuppertal, Germany., Nikkels AF; Department of Dermatology, University Medical Center of Liège, Liège, Belgium., Promm M; Department of Paediatric Urology and Clinic St. Hedwig, University Medical Centre of Regensburg, Regensburg, Germany., Rall KK; Department of Women's Health, Women's University Hospital Tuebingen, Tuebingen, Germany., Regauer S; Diagnostic and Research Institute of Pathology, Medical University Graz, Graz, Austria., Sárdy M; Department of Dermatology, Venereology and Dermatooncology, Semmelweis University, Budapest, Hungary., Sepp N; Department of Dermatology and Venereology, Ordensklinikum Linz Elisabethinen, Linz, Austria., Thune T; Department of Dermatology, Haukeland University Hospital, Bergen, Norway., Tsiogka A; 1st Department of Dermatology-Venereology, Faculty of Medicine, Andreas Sygros Hospital, National and Kapodistrian University of Athens, Athens, Greece., Vassileva S; Department of Dermatology and Venereology, University Hospital 'Alexandrovska', Medical University - Sofia, Sofia, Bulgaria., Voswinkel L; The German Lichen Sclerosus Association, Hamburg, Germany., Wölber L; Department of Gynaecology, University Medical Centre Hamburg-Eppendorf and Centre for Colposcopy and Vulvovaginal Disease Jersualem Hospital Hamburg, Hamburg, Germany., Werner RN; Division of Evidence-Based Medicine (dEBM), Department of Dermatology, Venereology and Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.

Publikováno v: Journal of the European Academy of Dermatology and Venereology : JEADV [J Eur Acad Dermatol Venereol] 2024 Oct; Vol. 38 (10), pp. 1874-1909. Date of Electronic Publication: 2024 Jun 01.

Clinical spectrum and long-term outcomes of mpox: a cohort study spanning from acute infection to six-month follow-up.

Autor: Zeyen C; Department of Dermatology, Venereology and Allergology, Division of Evidence-Based Medicine (dEBM), Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117, Berlin, Germany. christoph.zeyen@charite.de.; Department of Infectious Diseases, Respiratory Medicine and Critical Care, Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Campus Virchow Klinikum, Augustenburger Platz 1, 13353, Berlin, Germany. christoph.zeyen@charite.de., Kinberger M; Department of Dermatology, Venereology and Allergology, Division of Evidence-Based Medicine (dEBM), Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117, Berlin, Germany., Kriedemann H; Department of Infectious Diseases, Respiratory Medicine and Critical Care, Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Campus Virchow Klinikum, Augustenburger Platz 1, 13353, Berlin, Germany., Pfäfflin F; Department of Infectious Diseases, Respiratory Medicine and Critical Care, Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Campus Virchow Klinikum, Augustenburger Platz 1, 13353, Berlin, Germany., Tober-Lau P; Department of Infectious Diseases, Respiratory Medicine and Critical Care, Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Campus Virchow Klinikum, Augustenburger Platz 1, 13353, Berlin, Germany., Huang L; Department of Infectious Diseases, Respiratory Medicine and Critical Care, Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Campus Virchow Klinikum, Augustenburger Platz 1, 13353, Berlin, Germany., Corman VM; Institute of Virology, Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117, Berlin, Germany., Nast A; Department of Dermatology, Venereology and Allergology, Division of Evidence-Based Medicine (dEBM), Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117, Berlin, Germany., Sander LE; Department of Infectious Diseases, Respiratory Medicine and Critical Care, Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Campus Virchow Klinikum, Augustenburger Platz 1, 13353, Berlin, Germany., Kurth F; Department of Infectious Diseases, Respiratory Medicine and Critical Care, Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Campus Virchow Klinikum, Augustenburger Platz 1, 13353, Berlin, Germany., Werner RN; Department of Dermatology, Venereology and Allergology, Division of Evidence-Based Medicine (dEBM), Charité- Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117, Berlin, Germany.

Publikováno v: BMC infectious diseases [BMC Infect Dis] 2024 Mar 15; Vol. 24 (1), pp. 317. Date of Electronic Publication: 2024 Mar 15.

S3 guideline Atopic dermatitis: Part 2 - Systemic treatment.

Autor: Werfel T; Department of Dermatology, Allergology and Venereology, Hannover Medical School, Hannover, Germany., Heratizadeh A; Department of Dermatology, Allergology and Venereology, Hannover Medical School, Hannover, Germany., Aberer W; Department of Dermatology and Venereology, Medical University of Graz, Graz, Austria., Augustin M; Competence Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany., Biedermann T; Department of Dermatology and Allergology, University Medical Center Munich, Technical University of Munich, Munich, Germany., Bauer A; Department of Dermatology, University Hospital Carl Gustav Carus, Technical University Dresden, Dresden, Germany., Fölster-Holst R; Department of Dermatology, Venereology and Allergology, University Hospital Schleswig-Holstein, Campus Kiel, Germany., Kahle J; German Allergy and Asthma Association (DAAB), Mönchengladbach, Germany., Kinberger M; Department of Dermatology, Venereology and Allergology, Division of Evidence Based Medicine in Dermatology (dEBM), Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany., Nemat K; Office for Pediatric Pneumology and Allergology, Pediatric Center Dresden-Friedrichstadt (Kid), Dresden, Germany., Neustädter I; Hospital Hallerwiese, Cnopfsche Kinderklinik, Nuremberg, Germany., Peters E; Department of Psychosomatic Medicine and Psychotherapy, University Hospital Gießen, Gießen, Germany., von Kiedrowski R; Dermatology Office, Selters, Germany., Schmid-Grendelmeier P; Allergy Unit, Department of Dermatology, University Hospital Zurich, Zurich, Switzerland., Schmitt J; Center for Evidence-Based Healthcare (ZEGV), Medical Faculty Gustav Carus, Technical University Dresden, Dresden, Germany., Schwennesen T; German Eczema Association (DNB), Hamburg, Germany., Simon D; Department of Dermatology, Inselspital Bern, Bern, Switzerland., Spindler T; Specialized Clinic for Pediatric Pneumology and Allergology, Wangen, Germany., Traidl-Hoffmann C; Institute of Environmental Medicine, University Hospital Augsburg, Augsburg, Germany., Werner RN; Department of Dermatology, Venereology and Allergology, Division of Evidence Based Medicine in Dermatology (dEBM), Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany., Wollenberg A; Department of Dermatology and Allergology, University Hospital Augsburg, Augsburg, Germany.; Department of Dermatology and Allergy, Ludwig Maximilian University Munich, Munich, Germany., Worm M; Department of Dermatology, Venereology and Allergology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany., Ott H; Department of Pediatric Dermatology and Allergology, Children's and Adolescents' Hospital Auf der Bult, Hannover, Germany.

Publikováno v: Journal der Deutschen Dermatologischen Gesellschaft = Journal of the German Society of Dermatology : JDDG [J Dtsch Dermatol Ges] 2024 Feb; Vol. 22 (2), pp. 307-320. Date of Electronic Publication: 2023 Dec 31.

Livid-erythematous succulent papules and plaques in a 54-year-old female patient.

Autor: Huynh J; Klinik für Dermatologie, Venerologie und Allergologie, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin., Ghoreschi FC; Klinik für Dermatologie, Venerologie und Allergologie, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin., Werner RN; Klinik für Dermatologie, Venerologie und Allergologie, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin., Ghoreschi K; Klinik für Dermatologie, Venerologie und Allergologie, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin., Moritz RKC; Klinik für Dermatologie, Venerologie und Allergologie, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin.

Publikováno v: Journal der Deutschen Dermatologischen Gesellschaft = Journal of the German Society of Dermatology : JDDG [J Dtsch Dermatol Ges] 2024 Jan; Vol. 22 (1), pp. 129-132. Date of Electronic Publication: 2023 Dec 19.