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Deteriorament de la qualitat de vida relacionada amb la salut després d'un diagnòstic de síndrome de Cushing

Autor: Webb, S. M, Valassi, Elena

Investigadores de l'Hospital de Sant Pau i el Germans Trias i Pujol han estudiat com la síndrome de Cushing afecta la qualitat de vida dels pacients. Tot i que el tractament funcioni, l'exposició continuada a quantitats elevades de cortisol suposa

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=od______1404::2d196c7c37504c9bfd8e2b6bc3850398
https://ddd.uab.cat/record/272581

Current clinical practice for thromboprophylaxis management in patients with Cushing’s syndrome across reference centers of the European Reference Network on Rare Endocrine Conditions (Endo-ERN)

Autor: van Haalen, F. M., Kaya, M., Pelsma, I. C.M., Dekkers, O. M., Biermasz, N. R., Cannegieter, S. C., Huisman, M. V., van Vlijmen, B. J.M., Feelders, R., Klok, F. A., Pereira, A. M., Stochholm, K., Fliers, E., Castinetti, F., Brue, T., Bertherat, J., Scaroni, C., Colao, A., Giordano, R., Druce, M. R., Beckers, A., Spranger, J., Driessens, N., Maiter, D., Feldt-Rasmussen, U., Webb, S. M., Dattani, M., Husebye, E., Zilaitiene, B., Gaztambide, S., Gatto, F., Ferone, D., Persani, L., Chiodini, I., Höybye, C., Meijer, O. C., Reincke, M., Vila, G., Perry, C., Heck, A., Stancampiano, M. R., van de Ven, A., Johannsson, G., Ragnarsson, O., Tóth, M.

Publikováno v: Orphanet Journal of Rare Diseases, 17, 1
Endo-ERN Cushing and Thrombosis study group 2022, ' Current clinical practice for thromboprophylaxis management in patients with Cushing’s syndrome across reference centers of the European Reference Network on Rare Endocrine Conditions (Endo-ERN) ', Orphanet Journal of Rare Diseases, vol. 17, no. 1, 178 . https://doi.org/10.1186/s13023-022-02320-x
Endo-ERN Cushing and Thrombosis study group 2022, ' Current clinical practice for thromboprophylaxis management in patients with Cushing’s syndrome across reference centers of the European Reference Network on Rare Endocrine Conditions (Endo-ERN) ', Orphanet Journal of Rare Diseases, vol. 17, 178 . https://doi.org/10.1186/s13023-022-02320-x
Orphanet Journal of Rare Diseases, 17
van Haalen, F M, Kaya, M, Pelsma, I C M, Dekkers, O M, Biermasz, N R, Cannegieter, S C, Huisman, M V, van Vlijmen, B J M, Feelders, R, Klok, F A, Pereira, A M, Stochholm, K, Fliers, E, Castinetti, F, Brue, T, Bertherat, J, Scaroni, C, Colao, A, Giordano, R, Druce, M R, Beckers, A, Spranger, J, Driessens, N, Maiter, D, Feldt-Rasmussen, U, Feelders, R, Webb, S M, Dattani, M, Husebye, E, Zilaitiene, B, Gaztambide, S, Gatto, F, Ferone, D, Persani, L, Chiodini, I, Höybye, C, Pereira, A M, Biermasz, N R, Klok, F A, Meijer, O C, Reincke, M, Vila, G, Perry, C, Heck, A, Stancampiano, M R, van de Ven, A, Johannsson, G, Ragnarsson, O, Tóth, M & Endo-ERN Cushing and Thrombosis study group 2022, ' Current clinical practice for thromboprophylaxis management in patients with Cushing’s syndrome across reference centers of the European Reference Network on Rare Endocrine Conditions (Endo-ERN) ', Orphanet Journal of Rare Diseases, vol. 17, no. 1, 178 . https://doi.org/10.1186/s13023-022-02320-x
Orphanet Journal of Rare Diseases, 17. BMC
Orphanet journal of rare diseases, 17(1):178. BMC
Orphanet journal of rare diseases, 17(1):178. BioMed Central
Orphanet journal of rare diseases, Vol. 17, no.1, p. 178 [1-12] (2022)
Orphanet Journal of Rare Diseases, 17(1):178. BioMed Central
Orphanet Journal of Rare Diseases, 17(1):178. BioMed Central Ltd.

Background Cushing’s syndrome (CS) is associated with an hypercoagulable state and an increased risk of venous thromboembolism (VTE). Evidence-based guidelines on thromboprophylaxis strategies in patients with CS are currently lacking. We aimed to

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7fa3db872260fe058a14d59181ff089d
http://www.scopus.com/inward/record.url?scp=85129997291&partnerID=8YFLogxK

Mapping CushingQOL scores to EQ-5D utility values using data from the European Registry on Cushing's syndrome (ERCUSYN)

Autor: Badia, X., Roset, M., Valassi, E., Franz, H., Forsythe, A., Webb, S. M.

Publikováno v: Quality of Life Research, 2013 Dec 01. 22(10), 2941-2950.

Externí odkaz: https://www.jstor.org/stable/24725635

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