Registro brasileiro de biológicos: processo de implementação e resultados preliminares do BiobadaBrasil Brazilian biologic registry: BiobadaBrasil implementation process and preliminary results

Autor: David C Titton, Ines Guimarães Silveira, Paulo Louzada-Junior, Andre L Hayata, Hellen Mary S Carvalho, Roberto Ranza, Lucila S Rezende, Geraldo Castelar Pinheiro, Jair Licio F Santos, Jose Roberto Miranda, Jozelio Freitas Carvalho, Manoel Barros Bertolo, Marlene Freire, Morton A Scheinberg, Thelma L Skare, Vander Fernandes, Washington Bianchi, Ieda Maria M Laurindo

Publikováno v: Revista Brasileira de Reumatologia, Vol 51, Iss 2, Pp 152-160 (2011)

OBJETIVOS: O presente estudo teve por objetivo descrever o processo de implementação de um registro nacional em um país em desenvolvimento (Brasil) e relatar os principais resultados preliminares do registro BiobadaBrasil. MATERAL E MÉTODOS: Atra

Externí odkaz: https://doaj.org/article/697b52eb089f4a899076ded0bbd884cb

Health Assessment Questionnaire-Disability Index (HAQ-DI) use in modelling disease progression in diffuse cutaneous systemic sclerosis: an analysis from the EUSTAR database

Autor: Allanore Y., Bozzi S., Terlinden A., Huscher D., Amand C., Soubrane C., Siegert E., Czirjak L., Carreira P. E., Hachulla E., Zanatta E., Li M., Airo P., Mendoza F. A., Rosato E., Distler O. Svetlana Agachi, Walid Ahmed Abdel Atty Mohamed, Paolo Airò, Sabine Adler, Juan Jose Alegre-Sancho, Yannick Allanore, Lidia P. Ananieva, Codrina Ancuta, Branimir Anic, Fabiola Atzeni, Gianluigi Bajocchi, Alexandra Balbir-Gurman, Marko Baresic, Radim Becvar, Laura Belloli, Vera Bernardino, Washington Bianchi, Breno Valdetaro Bianchi, Otylia Kowal Bielecka, Francesco Paolo Cantatore, Patricia E. Carreira, Ivan Castellví, Marco Matucci Cerinic, Carlo Chizzolini, Lorinda S. Chung, Bernard Coleiro, Maura Couto, Mary Ellen Csuka, Giovanna Cuomo, Maurizio Cutolo, László Czirják, Lorenzo Dagna, Nemanja Damjanov, Ellen De Langhe, Francesco Del Galdo, Carlos de la Puente, Christopher Denton

Publikováno v: Arthritis Research & Therapy
Arthritis Research & Therapy, Vol 22, Iss 1, Pp 1-11 (2020)
Allanore, Yannick; Bozzi, Sylvie; Terlinden, Augustin; Huscher, Doerte; Amand, Caroline; Soubrane, Christina; Siegert, Elise; Czirják, László; Carreira, Patricia E; Hachulla, Eric; Zanatta, Elisabetta; Li, Mengtao; Airò, Paolo; Mendoza, Fabian A; Rosato, Edoardo; Distler, Oliver (2020). Health Assessment Questionnaire-Disability Index (HAQ-DI) use in modelling disease progression in diffuse cutaneous systemic sclerosis: an analysis from the EUSTAR database. Arthritis research & therapy, 22(1), p. 257. BioMed Central 10.1186/s13075-020-02329-2
ARTHRITIS RESEARCH & THERAPY

BackgroundPatients with diffuse cutaneous systemic sclerosis (dcSSc) have a poor prognosis. The importance of monitoring subjective measures of functioning and disability, such as the Health Assessment Questionnaire-Disability Index (HAQ-DI), is impo

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4b5c6852da2a56b81e83f966a4c9dc81
http://hdl.handle.net/11573/1467059

Smoking in Systemic Sclerosis: a Longitudinal European Scleroderma Trials and Research Group Study

Autor: Jaeger, Vk, Valentini, G, Hachulla, E, Cozzi, F, Distler, O, Airó, P, Czirják, L, Allanore, Y, Siegert, E, Rosato, E, Matucci-Cerinic, M, Caimmi, C, Henes, J, Carreira, Pe, Smith, V, Del Galdo, F, Denton, Cp, Ullman, S, Langhe, E, Riccieri, V, Alegre-Sancho, Jj, Rednic, S, Müller-Ladner, U, Walker, Ua, Ananieva, Lidia P., Florenzo, Iannone, Distler, JeorgH. W., Eduardo, Kerzberg, Bojana, Stamenkovic, José Antonio Pereira Da Silva, Ivan, Catellvì, Suleyavuz, Kamal, Solanki, Branimir, Anic, Esthela, Loyo, Tim, Schmeiser, Ruxandra Maria Ionescu, Peter, Villiger, Francesco Paolo Cantatore, Paloma Garcia de la Pena Lefebvre, Carina, Mihai, Dominique Farge Bancel, Pierluigi, Meroni, Thierry, Martin, Stefan, Heitmann, Nicolas, Hunzelmann, Fahrettin, Oksel, Washington, Bianchi, Sara, Bongiovanni, Radim, Becvar, Thierry, Zenone, Alexandra, Balbir-Gurman, Piotr, Wiland, Pawel, Zebryk, Francßoisspertini, Lori, Chung, Alessandra, Vacca, Carlo, Chizzolini, Carlo Francesco Selmi, Cristina-Mihaela, Tanaseanu, Ira, Litinsky, Houssiau, Frederic A., Brigitte, Krummel-Lorenz, Hsu, Vivien M., Francisca, Fontes, Alexandra Maria Burlui, Duska, Martinovic, Sergei, Popa, Itzhak, Rosner, Carmel, Mallia, Rosario, Foti, Luc, Mouthon, Martin, Aringer, Jacob van Laar, Roger, Hesselstrand, Maria Rosa Pozzi, Gabriela, Riemekasten, Cutolo, Maurizio, Paul, Hasler, Zea Mendoza Antonio, Cord, Sunderkotter, Codrina, Ancuta, Jean, Sibilia, Roberto, Caporali, Armando, Gabrielli, Raffaele, Pellerito, Ariane, Herrick, Øyvind, Midtvedt, Kilian, Eyerich, Brigitte, Granel, Lesley Ann Saketkoo, Maura, Couto, Yael, Eizikovits, Giuseppina, Abignano.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=od______3710::47cb6c156d6f5678137846c0c0cadee0
http://hdl.handle.net/11567/914883

Brazilian biologic registry: BiobadaBrasil implementation process and preliminary results

Autor: David C, Titton, Ines Guimarães, Silveira, Paulo, Louzada-Junior, Andre L, Hayata, Hellen Mary S, Carvalho, Roberto, Ranza, Lucila S, Rezende, Geraldo Castelar, Pinheiro, Jair Licio F, Santos, Jose Roberto, Miranda, Jozelio Freitas, Carvalho, Manoel Barros, Bertolo, Marlene, Freire, Morton A, Scheinberg, Thelma L, Skare, Vander, Fernandes, Washington, Bianchi, Ieda Maria M, Laurindo

Publikováno v: Revista brasileira de reumatologia. 51(2)

The present study aimed at describing the implementation process of a national registry in a developing country (Brazil) and at reporting the main preliminary results of the BiobadaBrasil registry.Through a PANLAR agreement, the Biobadaser protocol w

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::1cbc443bd0c5a9605be3820661ef1590
https://pubmed.ncbi.nlm.nih.gov/21584417