Zobrazeno 1 - 3
of 3
pro vyhledávání: '"Vicky McGrath"'
Autor:
Suja Somanadhan, Emma Nicholson, Emma Dorris, Aoife Brinkley, Avril Kennan, Eileen Treacy, Awan Atif, Sean Ennis, Vicky McGrath, Derick Mitchell, Grace O’Sullivan, Julie Power, Anne Lawlor, Paul Harkin, Sally Ann Lynch, Philip Watt, Avril Daly, Susie Donnelly, Thilo Kroll
Publikováno v:
HRB Open Research, Vol 3 (2020)
Background: Rare diseases are individually rare, but collectively these conditions are common. Research on rare diseases are currently focused on disease-specific needs rather than a life-course perspective. The Rare Disease Research Partnership (RAi
Externí odkaz:
https://doaj.org/article/e2283184ff8e4267ac1b5bd91ac24ffc
Autor:
Paul Harkin, Suja Somanadhan, Sean Ennis, Awan Atif, Emma R. Dorris, Avril Daly, Eileen P. Treacy, Julie Power, Sally Ann Lynch, Avril Kennan, Grace O’Sullivan, Susie Donnelly, Emma Nicholson, Anne Lawlor, Aoife Brinkley, Thilo Kroll, Derick Mitchell, Philip Watt, Vicky McGrath
Publikováno v:
HRB Open Research
Background: The Rare Disease Research Partnership (RAinDRoP) was established in 2018 to bring together a wide variety of diverse voices in the rare disease community in Ireland and form a research partnership. This approach enabled clinicians, patien
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::969ac51510d984a2258f536ed84fc6e2
https://pubmed.ncbi.nlm.nih.gov/33299965
https://pubmed.ncbi.nlm.nih.gov/33299965
Autor:
Paul Harkin, Emma R. Dorris, Derick Mitchell, Grace O’Sullivan, Julie Power, Anne Lawlor, Suja Somanadhan, Philip Watt, Sean Ennis, Sally Ann Lynch, Emma Nicholson, Avril Kennan, Vicky McGrath, Avril Daly, Susie Donnelly, Aoife Brinkley, Awan Atif, Thilo Kroll, Eileen P. Treacy
Publikováno v:
HRB Open Research. 3:13
Background: Rare diseases are individually rare, but collectively these conditions are common. Research on rare diseases are currently focused on disease-specific needs rather than a life-course perspective. The Rare Disease Research Partnership (RAi
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::0d9424818d0156ff022ab1528105f052
https://doi.org/10.12688/hrbopenres.13017.2
https://doi.org/10.12688/hrbopenres.13017.2