Zobrazeno 1 - 6
of 6
pro vyhledávání: '"Verena, Lührs"'
Autor:
Ana Babac, Martin Frank, Frédéric Pauer, Svenja Litzkendorf, Daniel Rosenfeldt, Verena Lührs, Lisa Biehl, Tobias Hartz, Holger Storf, Franziska Schauer, Thomas O. F. Wagner, J-Matthias Graf von der Schulenburg
Publikováno v:
BMC Health Services Research, Vol 18, Iss 1, Pp 1-14 (2018)
Abstract Background Rare diseases are, by definition, very serious and chronic diseases with a high negative impact on quality of life. Approximately 350 million people worldwide live with rare diseases. The resulting high disease burden triggers hea
Externí odkaz:
https://doaj.org/article/b75454208e5643aa8a23af54ee966039
Autor:
J.-Matthias Graf von der Schulenburg, Martin Frank, Uljana Pflaum, Frédéric Pauer, Verena Lührs
Publikováno v:
Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen. 113:36-44
Zusammenfassung Hintergrund In der Europaischen Union leiden etwa 30 Millionen Menschen an einer der 7.000 bis 8.000 seltenen Erkrankungen, von denen allein in Deutschland etwa vier Millionen Menschen betroffen sind. Bei seltenen Erkrankungen sind da
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::3eb0653b95173c666ddd179c32e4b434
https://doi.org/10.1016/j.zefq.2016.05.003
https://doi.org/10.1016/j.zefq.2016.05.003
Autor:
J-Matthias Graf von der Schulenburg, Lisa Biehl, Frédéric Pauer, Jens Göbel, Leena Bruckner-Tuderman, Holger Storf, Franziska Schauer, Verena Lührs, Ana Babac, Jörg Schmidtke, Martin Frank, Svenja Litzkendorf, Tof Wagner, Tobias Hartz
Publikováno v:
JMIR Research Protocols
Recently, public and political interest has focused on people living with rare diseases and their health concerns. Due to the large number of different types of rare diseases and the sizable number of patients, taking action to improve the life of th
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d3da94a3969f45ea9971f393880834ca
http://europepmc.org/articles/PMC6303670
http://europepmc.org/articles/PMC6303670
Autor:
Svenja Litzkendorf, Tobias Hartz, Jens Göbel, Holger Storf, Frédéric Pauer, Ana Babac, Verena Lührs, Leena Bruckner-Tuderman, Franziska Schauer, Jörg Schmidtke, Lisa Biehl, TOF Wagner, J-Matthias Graf von der Schulenburg, Martin Frank
BACKGROUND Recently, public and political interest has focused on people living with rare diseases and their health concerns. Due to the large number of different types of rare diseases and the sizable number of patients, taking action to improve the
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::637c2971d28d29244072fe8a84c164e2
https://doi.org/10.2196/preprints.7425
https://doi.org/10.2196/preprints.7425
Autor:
Frédéric, Pauer, Jens, Göbel, Holger, Storf, Svenja, Litzkendorf, Ana, Babac, Martin, Frank, Verena, Lührs, Franziska, Schauer, Jörg, Schmidtke, Lisa, Biehl, Thomas Of, Wagner, Frank, Ückert, Johann-Matthias, Graf von der Schulenburg, Tobias, Hartz
Publikováno v:
Interactive Journal of Medical Research
Background The European Union considers diseases to be rare when they affect less than 5 in 10,000 people. It is estimated that there are between 5000 and 8000 different rare diseases. Consistent with this diversity, the quality of information availa
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::a54555ea1dcf5a5e29009ab37a93b684
https://pubmed.ncbi.nlm.nih.gov/27562540
https://pubmed.ncbi.nlm.nih.gov/27562540
Autor:
Frédéric, Pauer, Uljana, Pflaum, Verena, Lührs, Martin, Frank, J-Matthias, Graf von der Schulenburg
Publikováno v:
Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen. 113
In the European Union, about 30 million people are affected by one of the 7,000 to 8,000 diseases being defined as rare. In Germany alone, an estimated 4 million people suffer from a rare disease. In many cases, therapeutic options and knowledge of s
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::0d58295a4c315222b56d81ccaae6e287
https://pubmed.ncbi.nlm.nih.gov/27480187
https://pubmed.ncbi.nlm.nih.gov/27480187