Real-world experience of rIX-FP prophylaxis at dosing intervals of 14 days or more in adult patients with haemophilia B in Italy - Results from IDEAL Part B.

Autor: Coppola A; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy., Peyvandi F; Department of Pathophysiology and Transplantation, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi, Haemophilia and Thrombosis Centre, and Università degli Studi di Milano, Milan, Italy., Banov L; Regional Reference Centre for Haemorrhagic Diseases, IRCCS Istituto Giannina Gaslini, Genova, Italy., Cultrera D; Haemophilia Regional Reference Centre, Haematology Unit, Policlinico 'G. Rodolico' - S. Marco Hospital, Catania, Italy., Margaglione M; Department of Clinical and Experimental Medicine, University of Foggia, Foggia, Italy., Tosetto A; Haemostasis and Thrombosis Unit, Haematology Department, San Bortolo Hospital, Vicenza, Italy., Valdrè L; Inherited Bleeding Disorders Unit, IRCCS AOUBO, Bologna, Italy., Schiavetti I; Department of Health Sciences, University of Genoa, Genova, Italy.; Hippocrates Research, Genova, Italy., Loraschi A; CSL Behring, Milan, Italy., Castaman G; Centre for Bleeding Disorders and Coagulation, Department of Oncology, Careggi University Hospital, Florence, Italy.

Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2024 Jul; Vol. 30 (4), pp. 1067-1070. Date of Electronic Publication: 2024 Jun 20.

Ultrasound Evaluation of Tendinopathy in Hemophiliac Patients for the Purpose of Rehabilitation Indications.

Autor: Donati D; Physical Therapy and Rehabilitation Unit, Policlinico di Modena, 41125 Modena, Italy.; Clinical and Experimental Medicine PhD Program, University of Modena and Reggio Emilia, 41124 Modena, Italy., Spinnato P; Diagnostic and Interventional Radiology, IRCCS Istituto Ortopedico Rizzoli, 40134 Bologna, Italy., Valdrè L; Inherited Bleeding Disorders Unit, IRCCS AOUBO, 40138 Bologna, Italy., Piscitelli L; Inherited Bleeding Disorders Unit, IRCCS AOUBO, 40138 Bologna, Italy., Farella GM; Physical Therapy and Rehabilitation Unit, IRCCS Istituto Ortopedico Rizzoli, University of Bologna, 40134 Bologna, Italy., Pagliarulo E; Physical Therapy and Rehabilitation Unit, IRCCS Istituto Ortopedico Rizzoli, University of Bologna, 40134 Bologna, Italy., Benedetti MG; Physical Therapy and Rehabilitation Unit, IRCCS Istituto Ortopedico Rizzoli, University of Bologna, 40134 Bologna, Italy.

Publikováno v: Journal of clinical medicine [J Clin Med] 2023 Jul 06; Vol. 12 (13). Date of Electronic Publication: 2023 Jul 06.

Cost-effectiveness analysis of late prophylaxis vs. on-demand treatment for severe haemophilia A in Italy

Autor: Coppola, A., D'Ausilio, A., Aiello, A., Amoresano, S., Toumi, M., Mathew, P., Tagliaferri, A., Feola, G., Molinari, A. C., Santoro, C., Rivolta, G. F., Cultrera, D. B., Gagliano, F., Zanon, E., Mancuso, M. E., Valdrè, L., Mameli, L., Banov, L., Di Minno, G., Quintavalle, G., Mazzucconi, M. G., Negri, N., Santagostino, E.

Introduction Long-term regular administrations of factor VIII (FVIII) concentrate (prophylaxis) initiated at an early age prevents bleeding in patients with severe haemophilia A (HA). The 5-year prospective Italian POTTER study provided evidence of b

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d1af4e8987305289d4bd5fee938f1824
http://hdl.handle.net/11588/720967

The effect of carriers' reproductive choices and pregnancy history on sporadic severe haemophilia: A 20-year retrospective study through a regional registry.

Autor: Riccardi F; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy., Coppola A; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy., Rivolta GF; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy., Matichecchia A; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy., Quintavalle G; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy., Biasoli C; Haemophilia and Transfusion Centre, 'Bufalini' Hospital, Cesena, Italy., Valdrè L; SSD Malattie Emorragiche Congenite, IRCCS Azienda Ospedaliero-Universitaria di Bologna, Bologna, Italy., Piscitelli L; SSD Malattie Emorragiche Congenite, IRCCS Azienda Ospedaliero-Universitaria di Bologna, Bologna, Italy., Percesepe A; Unit of Medical Genetics, University Hospital of Parma, Parma, Italy., Tagliaferri A; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy.

Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2022 Mar; Vol. 28 (2), pp. 308-315. Date of Electronic Publication: 2022 Jan 20.

Comparison of quality of life, and emotional and functional profiles in older people with and without severe haemophilia.

Autor: Riva S; Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre, Fondazione IRCCS Ca' Granda Maggiore Hospital Foundation, Milan, Italy.; Department of Psychology and Pedagogic Science, St Mary's University, London, UK., Marchesini E; Hemophilia Centre-SC Vascular and Emergency Department, University of Perugia, Perugia, Italy., Oliovecchio E; Hemophilia Centre-SC Vascular and Emergency Department, University of Perugia, Perugia, Italy., Coppola A; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy., Santagostino E; Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre, Fondazione IRCCS Ca' Granda Maggiore Hospital Foundation, Milan, Italy., Radossi P; Oncohematology Department Istituto Oncologico Veneto, Castelfranco Veneto Hospital, Castelfranco Veneto, Italy., Castaman G; Center for Bleeding Disorders and Coagulation, Department of Oncology, Careggi University Hospital, Florence, Italy., Valdrè L; Unit of Angiology and Coagulation Disorders, S. Orsola-Malpighi University Hospital, Bologna, Italy., Santoro C; Hematology Department of Cellular Biotechnologies and Hematology, Sapienza University of Rome, Rome, Italy., Tagliaferri A; Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy., Ettorre CP; Hemophilia and Thrombosis Center, Policlinico Giovanni XXIII, Bari, Italy., Zanon E; Department of Cardiovascular Sciences, Vascular Medicine Unit, University of Padua, Padua, Italy., Barillari G; Center for Haemorrhagic and Thrombotic Disorders, General and University Hospital, Udine, Italy., Cantori I; Haemophilia Center, Regional Reference Center for Inherited Bleeding and Thrombophilic Disorders, Civil Hospital, Macerata, Italy., Caimi TM; A De Gasperis Cardiovascular Department, Niguarda Ca' Granda Hospital, Milan, Italy., Sottilotta G; Hemostasis and Thrombosis Unit, Bianchi-Melacrino-Morelli' Metropolitan Hospital, Reggio Calabria, Italy., Iorio A; Department of Clinical Epidemiology and Biostatistics, Department of Medicine, McMaster University, Hamilton, Canada., Mannucci PM; Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre, Fondazione IRCCS Ca' Granda Maggiore Hospital Foundation, Milan, Italy.

Publikováno v: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2021 Jul; Vol. 27 (4), pp. e525-e529. Date of Electronic Publication: 2021 Feb 04.