The ethical challenges of diversifying genomic data: A qualitative evidence synthesis.

Autor: Hardcastle F; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK.; Clinical Ethics, Law and Society (CELS), The NIHR Southampton Biomedical Research Centre, University of Southampton, Southampton, UK., Lyle K; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK.; Clinical Ethics, Law and Society (CELS), The NIHR Southampton Biomedical Research Centre, University of Southampton, Southampton, UK., Horton R; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK., Samuel G; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK.; King's College London, London, UK., Weller S; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK.; Clinical Ethics, Law and Society (CELS), The NIHR Southampton Biomedical Research Centre, University of Southampton, Southampton, UK., Ballard L; Clinical Ethics, Law and Society (CELS), The NIHR Southampton Biomedical Research Centre, University of Southampton, Southampton, UK., Thompson R; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK., De Paula Trindade LV; Clinical Ethics, Law and Society (CELS), The NIHR Southampton Biomedical Research Centre, University of Southampton, Southampton, UK., Gómez Urrego JD; Clinical Ethics, Law and Society (CELS), The NIHR Southampton Biomedical Research Centre, University of Southampton, Southampton, UK., Kochin D; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK., Johnson T; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK., Tatz-Wieder N; Big Data Institute, University of Oxford, Oxford, UK., Redrup Hill E; PHG Foundation, University of Cambridge, Cambridge, UK., Robinson Adams F; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK.; Centre for Science and Policy, University of Cambridge, Cambridge, UK., Eskandar Y; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK., Harriss E; Bodleian Health Care Libraries, University of Oxford, Oxford, UK., Tsosie KS; Arizona State University, Tempe, AZ, USA., Dixon P; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK.; Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK., Mackintosh M; Genomics England Ltd, London, UK.; Alan Turning Institute, London, UK., Nightingale L; Genomics England Ltd, London, UK., Lucassen A; Clinical Ethics, Law and Society group (CELS), and Centre for Personalised Medicine, Wellcome Centre for Human Genetics, University of Oxford, Oxford, UK.; Clinical Ethics, Law and Society (CELS), The NIHR Southampton Biomedical Research Centre, University of Southampton, Southampton, UK.

Publikováno v: Cambridge prisms. Precision medicine [Camb Prism Precis Med] 2023 Sep 12; Vol. 2, pp. e1. Date of Electronic Publication: 2023 Sep 12 (Print Publication: 2024).