Development and sensibility assessment of a health‐related quality of life instrument for adults with severe disabilities who are non‐ambulatory

Autor: Heleen A. Reinders-Messelink, Agnes Elema, Trees A. L. Zalmstra, Annette van der Putten, Willemijn van Gils, Corry K. van der Sluis

Publikováno v: Journal of Applied Research in Intellectual Disabilities
Journal of Applied Research in Intellectual Disabilities, 34(4), 1127-1135. Wiley

Background Insight in health-related quality of life (HRQoL) of adults with severe disabilities who are non-ambulatory is important, but a measure is lacking. The aim was to develop a HRQoL measure for this group.Method The developmental process cons

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6052e081f5fa638c781fc7f3146dad7d
http://europepmc.org/articles/PMC8359413

Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Dutch non-ambulatory children with cerebral palsy

Autor: Annette van der Putten, Agnes Elema, Anne M. Boonstra, Robert Lindeboom, Unni G. Narayanan, Karel G. B. Maathuis, Heleen A. Reinders-Messelink, Carla Vlaskamp, Trees A. L. Zalmstra

Publikováno v: Disability and rehabilitation, 37(5), 411-416. Informa Healthcare
Disability and Rehabilitation, 37(5), 411-416. Taylor & Francis Ltd

Purpose: To assess the reliability and validity of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD)-Dutch Version, a proxy measure of health status and well-being of non-ambulatory children with cerebral palsy (CP).

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b38f0797d3f7925f594ca1f447923ed1
http://www.scopus.com/inward/record.url?scp=84923996789&partnerID=8YFLogxK