Zobrazeno 1 - 2
of 2
pro vyhledávání: '"Toniya Brown"'
Autor:
Emily Eidenier Pearce, Alina Majid, Toniya Brown, Rowan Forbes Shepherd, Camella Rising, Catherine Wilsnack, Ashley S Thompson, Melissa B Gilkey, Kurt M Ribisl, Allison J Lazard, Paul KJ Han, Allison Werner-Lin, Sadie P Hutson, Sharon A Savage
Publikováno v:
JMIR Formative Research, Vol 8, p e64343 (2024)
BackgroundWeb-based information and social support are commonly used in rare disease communities where geographic dispersion and limited provider expertise complicate in-person support. We examined web-based resource use among caregivers of individua
Externí odkaz:
https://doaj.org/article/f0d9b4645bab43738c1548aa077bd21b
Autor:
Emily E. Pearce, Alina Majid, Toniya Brown, Catherine Wilsnack, Camella Rising, Ashley S. Thompson, Rowan Forbes Shepherd, Arman Niknafs, Allison Werner-Lin, Melissa B. Gilkey, Kurt M. Ribisl, Sadie P. Hutson, Paul K.J. Han, Sharon A. Savage
Publikováno v:
SSM: Qualitative Research in Health, Vol 6, Iss , Pp 100486- (2024)
Background: Medical uncertainty may cause distress and challenge medical decision-making for patients with rare diseases and their caregivers. Few studies have examined the experience and management of medical uncertainty in rare disease and the dyna
Externí odkaz:
https://doaj.org/article/d065f0fded67465ca22cb1916c1a6bbd