Chameleon project: a children’s end-of-life care quality improvement project

Autor: Joseph C Manning, Hayley Griffin, Nicola Kelly, Sarah Haynes, Jennifer Turnbull, Helena Clements, Kerry Webb, Toni Wolff, Caroline Dorsett, Alexander Connolly, Anjum Deorukhkar, Anjana Chhaochharia

Publikováno v: BMJ Open Quality, Vol 10, Iss 4 (2021)

In response to there being no specialist paediatric palliative care (PPC) team in a region of England, we undertook a 12-month quality improvement project (funded by National Health Service England’s Marginal Rate Emergency Threshold and Readmissio

Externí odkaz: https://doaj.org/article/f4a43047222044feb919b6e84c41b9af

Writing a good anticipatory care plan for a child with severe disability

Autor: Caroline Dorsett, Toni Wolff, Sarah Haynes

Publikováno v: Paediatrics and Child Health. 29:441-447

There are increasing numbers of children with severe disability and life limiting conditions living longer in the community. In order for them to have high quality end of life care and choice of place of death there need to be discussions with the ch

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::68cb67504fb0e6daf424a3a3e7bf473e
https://doi.org/10.1016/j.paed.2019.07.005

Evaluating a community respiratory physiotherapy service for children with neurodisability

Autor: Samantha Smith, Moira Flanigan, Sarah Haynes, Anastasia Michael, Toni Wolff

Publikováno v: BMJ Open Quality. 11:e001683

BackgroundChildren with neurodisability are at an increased risk of respiratory problems and complications, which often result in prolonged, frequent hospital admissions and are the biggest cause of mortality in this client group. The Children’s Co

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f1194cc47caa5c7b227f76dec8369b6f
https://doi.org/10.1136/bmjoq-2021-001683

Minimising crisis points in paediatric palliative care: the ACT care pathways in action

Autor: Jackie Brown, Toni Wolff

Publikováno v: Perspectives on Palliative Care for Children and Young People ISBN: 9781315383637
Perspectives on Palliative Care for Children and Young People

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::07fcd15321cfd6a203488cd1e0abcd18
https://doi.org/10.1201/9781315383637-24

Did we aim high enough? Will legislation lead to better results for disabled children?

Autor: Susan Dryden, Sarah Gough, Jane Williams, Toni Wolff

Publikováno v: Paediatrics and Child Health. 24:355-361

In 2007, the ‘Aiming High’ programme set out to improve outcomes for children with disabilities in the UK. There continues to be a plethora of legislation, acts, guidance and changes in practice but is there any evidence of real change for childr

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::126a729b11c591c4065c52bccc8005b2
https://doi.org/10.1016/j.paed.2014.02.006