Zobrazeno 1 - 2
of 2
pro vyhledávání: '"Tina Černe"'
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-13 (2024)
Abstract Background Research on rare diseases focuses less on caregivers, who play an important role in meeting the medical and social needs of the people they care for. Caregivers of people with rare diseases face negative outcomes due to problems w
Externí odkaz:
https://doaj.org/article/06d140b7dac34a23a7e8397f44d73585
Publikováno v:
JMIR Research Protocols, Vol 13, p e53362 (2024)
BackgroundRare diseases in Europe are defined as diseases with a prevalence of less than 5 per 10,000 people. Despite their individual rarity, the total number of rare diseases is considerable. Rare diseases are often chronic and complex, affecting p
Externí odkaz:
https://doaj.org/article/8579e482a7c04af1babf72e6b1ebeee4