Zobrazeno 1 - 10
of 57
pro vyhledávání: '"Timothy J. Brei"'
Autor:
Timothy J. Brei
Publikováno v:
The Scientific World Journal, Vol 7, Pp 1752-1756 (2007)
The multidisciplinary clinic is the accepted model for health care delivery related to spina bifida. This article focuses on the factors affecting multidisciplinary care delivery and future challenges for multidisciplinary programs.
Externí odkaz:
https://doaj.org/article/799b4861570e41feaa9103ff35764149
Publikováno v:
Technology & Innovation. 22:157-164
The COVID-19 pandemic has dramatically impacted delivery of outpatient care. Many people with spina bifida (SB) in the U.S. receive outpatient healthcare in a multidisciplinary setting. In accordance with state healthcare mandates, outpatient multidi
Publikováno v:
Journal of Pediatric Rehabilitation Medicine
Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) are important concepts across the life span for those with spina bifida (SB). This article discusses the SB Quality of Life Healthcare Guidelines from the 2018 Spina Bifida Association
Publikováno v:
Journal of Pediatric Nursing. 49:10-17
Purpose The measurement of Quality of life (QOL) in adolescents and especially in adolescents with disabilities is limited, often by an assessment of function rather than perception. This analysis explores QOL in adolescents and young adults (AYA) wi
Autor:
Sherry L. Farr, Catharine Riley, Alissa R. Van Zutphen, Timothy J. Brei, Vinita Oberoi Leedom, Russell S. Kirby, Laura J. Pabst
Publikováno v:
Birth Defects Res
Publikováno v:
Journal of Pediatric Rehabilitation Medicine. 13:453-455
The COVID-19 pandemic has reminded us that, if of nothing else, we live in a globalized community. Enthusiasm for evidenced-based medical knowledge is also contagious. Just as the incidence of SARS-CoV-2, the associated coronavirus, has had a borderl
Publikováno v:
Journal of Pediatric Rehabilitation Medicine
Self-management and independence behaviors are associated with improved health conditions common to spina bifida such as skin integrity and bowel and bladder management. While most children with spina bifida ultimately achieve basic self-care behavio
Autor:
Melissa H. Bellin, Kathleen J. Sawin, Jason Woodward, Jaclyn R. MacFarlane Bookman, Lynne Romeiser Logan, Rachel H.F. Margolis, Timothy J. Brei
Publikováno v:
Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions ISBN: 9783030233860
Nurses are integral members of interdisciplinary healthcare teams providing transition services to adolescents and young adults with long-term conditions and disabilities. Using valid and reliable measures of self-management and transition readiness
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::5ae45f6266e0ad0983be2d8dbb09eb7c
https://doi.org/10.1007/978-3-030-23384-6_4
https://doi.org/10.1007/978-3-030-23384-6_4
Publikováno v:
Journal of Pediatric Rehabilitation Medicine. 11:103-114
PURPOSE Psychometric data are reported for a new Global Family Quality of Life Scale (G-FQOLS) (3-items) evaluating family members, parents and adolescent/young adults (AYA). METHODS Families (N= 209) were interviewed in a study addressing secondary
Autor:
John S. Wiener, Elisabeth Ward, Michael S. Schechter, Heidi Castillo, Kurt A. Freeman, Timothy J. Brei, Judy Thibadeau, Tiebin Liu, Jonathan Castillo
Publikováno v:
J Pediatr Rehabil Med
Purpose Continence is low in individuals with spina bifida, but published prevalence varies markedly across studies. The objective of this study was to examine bladder and bowel continence among patients served by multidisciplinary clinics participat