Zobrazeno 1 - 10
of 34
pro vyhledávání: '"T. S. Hagedorn"'
Autor:
A. M. J. van Wegberg, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. van Vliet, F. J. van Spronsen
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Abstract Background In the Netherlands (NL) the government assigned 2 hospitals as centres of expertise (CE) for Phenylketonuria (PKU), while in the United Kingdom (UK) and Germany no centres are assigned specifically as PKU CE’s. Methods To identi
Externí odkaz:
https://doaj.org/article/80ea178ef13847edae2b73f7ab61e429
Autor:
F. K. Trefz, D. van Vliet, D. Abeln, E. Lange, T. S. Hagedorn, F. J. van Spronsen, A.M.J. van Wegberg, Anita MacDonald
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Orphanet journal of rare diseases, 16(1):2. BMC
Orphanet Journal of Rare Diseases
Orphanet journal of rare diseases, 16(1):2. BMC
Orphanet Journal of Rare Diseases
Background In the Netherlands (NL) the government assigned 2 hospitals as centres of expertise (CE) for Phenylketonuria (PKU), while in the United Kingdom (UK) and Germany no centres are assigned specifically as PKU CE’s. Methods To identify expect
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::eb314866c66ef075b94d671c2d5f4f98
https://doi.org/10.1186/s13023-020-01647-7
https://doi.org/10.1186/s13023-020-01647-7
Autor:
Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 1: Questionnaire - How do you see the future in terms of treatment for PKU?
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1c2abe3579098f1f1c44d4e0476b01c4
Autor:
Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 3: Table 2. Answers of the correspondents to the question: What do you expect from the PKU centres of expertise and not so much from the other hospitals?
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a4056b274d7d5bae58f7bc116bdd920e
Autor:
Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 8: Table 7. Answers of the correspondents to the question: What do you expect when you or your child visits a PKU centre of expertise?
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::30aa67f30280f75839d6fe0ce7c0fc76
Autor:
Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 5: Table 4. Answers of the correspondents to the question: How would you like to receive information about new developments?
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5a3bf9ed1cc549aa2f3dcc1c1f234e34
Autor:
Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 2: Table 1. Answers of the correspondents to the question: Who do you think can benefit from the PKU centres of expertise in your country that are affiliated with the European collaboration?
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9eaac2cad9078bfc6efc142427e1d9b1
Autor:
Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 4: Table 3. Answers of the correspondents to the question: How would you like to receive information about participation in scientific research?
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0a7446bb248aa3de5c311f4c7276b670
Autor:
Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 6: Table 5. Answers of the correspondents to the question: I would participate in scientific research if...
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::20fac669ba788309e44501db24bfd3f4
Autor:
Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 9: Table 8. Answers of the correspondents to the question: The treatment of you or your child is located in a hospital which is now officially a PKU centre of expertise. What do you expect when receiving an extensive review?
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2bbfdbd8288bc04214a7252f1f6455ae