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of 26
pro vyhledávání: '"T. J. Kasperbauer"'
Autor:
T. J. Kasperbauer, Colin Halverson
Publikováno v:
Frontiers in Medicine, Vol 8 (2021)
Research biobanks that enroll minors face important practical, ethical, and regulatory challenges in reconsenting participants when they reach the age of 18. Federal regulations governing research in the United States provide minimal guidance and all
Externí odkaz:
https://doaj.org/article/04a9fdcc49be4f3b895498cbc94300ed
Autor:
Amy Waltz, Brenda Hudson, Karen Schmidt, T. J. Kasperbauer, Peter H. Schwartz, Courtney Moore, Bridget Hawryluk
Publikováno v:
Academic Medicine. 97:62-68
Academic health centers and health systems increasingly ask patients to enroll in research biobanks as part of standard care, raising important practical and ethical questions for integrating biobank consent processes into health care settings. This
Autor:
Clare Palmer, T. J. Kasperbauer
Publikováno v:
The Routledge Companion to Environmental Ethics ISBN: 9781315768090
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::2def2c2b34ec18d3092decfaa51e795c
https://doi.org/10.4324/9781315768090-6
https://doi.org/10.4324/9781315768090-6
Autor:
Peter H. Schwartz, T. J. Kasperbauer
Publikováno v:
Hastings Center Report. 50:30-39
Genetic information is widely thought to pose unique risks of reidentifying individuals. Genetic data reveals a great deal about who we are and, the standard view holds, should consequently be treated differently from other types of data. Contrary to
Publikováno v:
Journal of empirical research on human research ethics : JERHRE. 17(1-2)
Biobank participants are often unaware of possible uses of their genetic and health information, despite explicit descriptions of those uses in consent forms. To explore why this misunderstanding persists, we conducted semi-structured interviews and
Autor:
Jake Greenblum, T. J. Kasperbauer
Publikováno v:
Journal of Bioethical Inquiry. 18:189-191
In a recent article for this journal, Bryan Pilkington (2019) makes a number of critical observations about one of our arguments for non-traditional medical conscientious objectors’ duty to refer. Non-traditional conscientious objectors are those p
Publikováno v:
Frontiers in Medicine
Frontiers in Medicine, Vol 8 (2021)
Frontiers in Medicine, Vol 8 (2021)
Research biobanks that enroll minors face important practical, ethical, and regulatory challenges in reconsenting participants when they reach the age of 18. Federal regulations governing research in the United States provide minimal guidance and all
Autor:
David E. Wright, T. J. Kasperbauer
Publikováno v:
Bioethics. 34:235-241
This paper argues that the Food and Drug Administration's (FDA) policy for health and wellness apps is ethically problematic. Currently, the FDA does not regulate health and wellness apps that are not intended for medical use. As a result of this han
Publikováno v:
AJOB empirical bioethics. 12(2)
Biobank participants often do not understand much of the information they are provided as part of the informed consent process, despite numerous attempts at simplifying consent forms and improving their readability. We report the first assessment of
Autor:
T. J. Kasperbauer
Publikováno v:
Journal of evaluation in clinical practiceREFERENCES. 27(3)
The goals of learning health systems (LHS) and of AI in medicine overlap in many respects. Both require significant improvements in data sharing and IT infrastructure, aim to provide more personalized care for patients, and strive to break down tradi