Parents perspectives on whole genome sequencing for their children: qualified enthusiasm?

Autor: Anderson, J A, Meyn, M S, Shuman, C, Shaul, R Zlotnik, Mantella, L E, Szego, M J, Bowdin, S, Monfared, N, Hayeems, R Z

Publikováno v: Journal of Medical Ethics, 2017 Aug 01. 43(8), 535-539.

Externí odkaz: https://www.jstor.org/stable/44606618

Views from the clinic: Healthcare provider perspectives on whole genome sequencing in paediatrics.

Autor: Szego MJ; Joint Centre for Bioethics, University of Toronto, Toronto, Canada; St. Michael's Hospital, Toronto, Canada; Department of Family and Community Medicine, University of Toronto, Toronto, Canada; Dalla Lana School of Public Health, University of Toronto, Canada; The Centre for Applied Genomics, The Hospital for Sick Children, Toronto, Canada., Meyn MS; Division of Clinical and Metabolic Genetics, The Hospital for Sick Children, Toronto, Canada; The Centre for Genetic Medicine, The Hospital for Sick Children, Toronto, Canada; Department of Molecular Genetics, University of Toronto, Toronto, Canada; Program in Genetics and Genomic Biology, The Hospital for Sick Children, Toronto, Canada; The Centre for Applied Genomics, The Hospital for Sick Children, Toronto, Canada; Department of Paediatrics, University of Toronto, Toronto, Canada., Shuman C; Division of Clinical and Metabolic Genetics, The Hospital for Sick Children, Toronto, Canada; Department of Genetic Counselling, The Hospital for Sick Children, Toronto, Canada; The Centre for Genetic Medicine, The Hospital for Sick Children, Toronto, Canada; Department of Molecular Genetics, University of Toronto, Toronto, Canada; Program in Genetics and Genomic Biology, The Hospital for Sick Children, Toronto, Canada., Zlotnik Shaul R; Joint Centre for Bioethics, University of Toronto, Toronto, Canada; Department of Paediatrics, University of Toronto, Toronto, Canada; Department of Bioethics, The Hospital for Sick Children, Toronto, Canada; Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Canada., Anderson JA; Joint Centre for Bioethics, University of Toronto, Toronto, Canada; Department of Bioethics, The Hospital for Sick Children, Toronto, Canada., Bowdin S; Division of Clinical and Metabolic Genetics, The Hospital for Sick Children, Toronto, Canada; The Centre for Genetic Medicine, The Hospital for Sick Children, Toronto, Canada; Department of Molecular Genetics, University of Toronto, Toronto, Canada; Program in Genetics and Genomic Biology, The Hospital for Sick Children, Toronto, Canada; The Centre for Applied Genomics, The Hospital for Sick Children, Toronto, Canada; Department of Paediatrics, University of Toronto, Toronto, Canada., Monfared N; Division of Clinical and Metabolic Genetics, The Hospital for Sick Children, Toronto, Canada; Department of Genetic Counselling, The Hospital for Sick Children, Toronto, Canada., Hayeems RZ; The Centre for Genetic Medicine, The Hospital for Sick Children, Toronto, Canada; Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Canada; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada. Electronic address: robin.hayeems@sickkids.ca.

Publikováno v: European journal of medical genetics [Eur J Med Genet] 2019 May; Vol. 62 (5), pp. 350-356. Date of Electronic Publication: 2018 Nov 29.