Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome

Autor: Jill C. Handisides, Danielle Hollenbeck-Pringle, Karen Uzark, Felicia L. Trachtenberg, Victoria L. Pemberton, Teresa W. Atz, Timothy J. Bradley, Elizabeth Cappella, Sylvia De Nobele, Georgeann Keh-Teng Groh, Michelle S. Hamstra, Rosalind Korsin, Jami C. Levine, Bergen Lindauer, Aimee Liou, Meghan K. Mac Neal, Larry W. Markham, Tonia Morrison, Kathleen A. Mussatto, Aaron K. Olson, Mary Ella M. Pierpont, Reed E. Pyeritz, Elizabeth A. Radojewski, Mary J. Roman, Mingfen Xu, Ronald V. Lacro, Gail Pearson, Mario Stylianou, Lynn Mahony, Lynn Sleeper, Sharon Tennstedt, Steven Colan, Gloria Klein, Lin Guey, Lisa Wruck, Thomas Travison, Shan Chen, Eric Gerstenberger, Tanya Olesker, David F. Teitel, Jane Newburger, Martha King, Carolyn Dunbar-Masterson, Andrea Posa, Quincy Nang, Cara Hass, Daphne Hsu, Wyman Lai, William Hellenbrand, Beth Printz, Richard Devereux, Greysi Sherwood, Victoria Vetter, Stephen Paridon, Marie Gleason, Nicole Mirarchi, Sandra DiLullo, Agbenu Ejembi, Ruth Morgan, D. Woodrow Benson, William Border, James Cnota, Haleh Heydarian, Jeanne James, Kathryn Hogan, Lois Bogenschutz, Mary Pat Benham, Teresa Barnard, Page A.W. Anderson, Jennifer S. Li, Stephanie Burns Wechsler, Amanda Cook, Charles Sang, Wesley Covitz, Lori Jo Sutton, Kari Crawford, Summer Roberts, Deborah Palmer, J. Philip Saul, Andrew Atz, Geoffrey Forbus, Patricia Infinger, Aparna Choudhury, LuAnn Minich, Richard Williams, Angela Yetman, Marian Shearrow, Michelle Robinson, June Porter, Brian McCrindle, Jennifer Russell, Jack Colman, Svetlana Khaikin, Nancy Slater, Harry C. Dietz, William J. Ravekes, Mary Rykiel, Elisabeth Sparks, Gretchen MacCarrick, Jennifer Leadroot, Charles Canter, Angela Sharkey, Alan Braverman, Cheryl Rainey, John L. Jefferies, Timothy Slesnick, Hugo Martinez, Andres Menesses, Tunu Tenende, David Liang, Elisabeth Merkel, Bart Loeys, Julie De Backer, Jan Maarten Cobben, Thierry Sluysmans, Anne De Paepe, Bruce Gelb, Shubhika Srivastava, Tejani Mendiz-Ramdeen, Constance Weismann, Emily Lawrence, Stephanie Chin, Helen Ko, Jen Le Yau, Steven Webber, Stacey Drant, Jane Luce, Kevin Stiegler, Cheryl Kinnard, Cheri Stewart, Sue Sommers, Carol Madison, Luciana Young, Megan Domenico, Kathryn Waitzman, Carla Lozano, Charles Baker, Erin Zielinski, Heidi Vander Velden, Alison Overman, Mark Lewin, Amy Payne, David Rimoin, Mitchel Pariani, Robert Siegel, Asim Rafique, Paul Grossfeld, Arlene Smith, Terri McLees-Palinkas, Steven D. Colan, Elif Seda Selamet Tierney, Shari Trevey, Marga Rivera, Michael Artman, Erle Austin, H. Scott Baldwin, Daniel Bernstein, Timothy Feltes, Julie Johnson, Thomas Klitzner, Jeffrey Krischer, G. Paul Matherne, Kenneth G. Zahka, John Kugler, David J. Driscoll, Mark Galantowicz, Sally A. Hunsberger, Thomas J. Knight, Holly Taylor

Publikováno v: Journal of pediatrics, 204, 250-255.e1. Mosby Inc.

Objective: To assess health-related quality of life (HRQOL) in a large multicenter cohort of children and young adults with Marfan syndrome participating in the Pediatric Heart Network Marfan Trial. Study design: The Pediatric Quality of Life Invento

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2530a9f1fc030a72b355753b97794f31
https://doi.org/10.1016/j.jpeds.2018.08.061

Prenatal diagnosis and risk factors for preoperative death in neonates with single right ventricle and systemic outflow obstruction: Screening data from the Pediatric Heart Network Single Ventricle Reconstruction Trial∗

Autor: Andrew M, Atz, Thomas G, Travison, Ismee A, Williams, Gail D, Pearson, Peter C, Laussen, William T, Mahle, Amanda L, Cook, Joel A, Kirsh, Mark, Sklansky, Svetlana, Khaikin, Caren, Goldberg, Michele, Frommelt, Catherine, Krawczeski, Michael D, Puchalski, Jeffrey P, Jacobs, Jeanne M, Baffa, Jack, Rychik, Richard G, Ohye, Catherine L, Webb

Publikováno v: The Journal of Thoracic and Cardiovascular Surgery. 140:1245-1250

ObjectivesThe purpose of this analysis was to assess preoperative risk factors before the first-stage Norwood procedure in infants with hypoplastic left heart syndrome and related single-ventricle lesions and to evaluate practice patterns in prenatal

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::352b1f6fd9fbd8d2fba6b4c88afb3040
https://doi.org/10.1016/j.jtcvs.2010.05.022

Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation

Autor: Karen Uzark, Victor Zak, Peter Shrader, Brian W. McCrindle, Elizabeth Radojewski, James W. Varni, Kaitlyn Daniels, Jill Handisides, Kevin D. Hill, Linda M. Lambert, Renee Margossian, Victoria L. Pemberton, Wyman W. Lai, Andrew M. Atz, Gail Pearson, Mario Stylianou, Jonathan Kaltman, Lynn Sleeper, Steven Colan, Dianne Gallagher, Lynn Mahony, Jane Newburger, Roger Breitbart, Carolyn Dunbar-Masterson, Lisa-Jean Buckley, Bethany Trainor, Rosalind Korsin, Robert Shaddy, J. William Gaynor, Stephen M. Paridon, Tonia Morrison, Nicole Mirarchi, Jennifer S. Li, Piers Barker, Mingfen Xu, J. Philip Saul, Patricia Infinger, Ann Harvey Frampton, LuAnn Minich, Richard Williams, Linda Lambert, Brian McCrindle, Svetlana Khaikin, Patricia Walter, Bradley Marino, Michael Artman, Timothy Feltes, Julie Johnson, Jeffrey Krischer, G. Paul Matherne, Nakela Cook, John Kugler, David Gordon, David J. Driscoll, Mark Galantowicz, Sally A. Hunsberger, Holly Taylor, Thomas J. Knight, Catherine L. Webb

Publikováno v: The Journal of pediatrics. 170

To assess self-reported quality of life (QOL) in a large multicenter cohort of adolescent and young adults surviving Fontan.Cross-sectional. The Pediatric Quality of Life Inventory (PedsQL) was administered to 408 survivors of Fontan ages 13-25 years

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::43e81ab72d72c8a136cb6845840517d3
https://pubmed.ncbi.nlm.nih.gov/26685073

Remote ischemic preconditioning in children undergoing cardiac surgery with cardiopulmonary bypass: a single-center double-blinded randomized trial

Autor: Helen Holtby, Svetlana Khaikin, Nadia A. Clarizia, Cedric Manlhiot, Steven M. Schwartz, Stephen W. Scherer, Andrew N. Redington, Glen S. Van Arsdell, Brian W. McCrindle, John G. Coles, Christopher A. Caldarone

Publikováno v: Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease

Background Remote ischemic preconditioning ( RIPC ) harnesses an innate defensive mechanism that protects against inflammatory activation and ischemia‐reperfusion injury, known sequelae of cardiac surgery with cardiopulmonary bypass. We sought to d

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ccc1d88fe0d6f578dab0ff4522f74844
https://pubmed.ncbi.nlm.nih.gov/25074698

LINEAR GROWTH FAILURE IS ASSOCIATED WITH WORSE NEURODEVELOPMENTAL OUTCOME IN INFANTS WITH SINGLE VENTRICLE PHYSIOLOGY

Autor: Renee Sananes, Amanda L. Cook, Daphne T. Hsu, Teresa Atz, Ismee A. Williams, Daniel J. Licht, Catherine D. Krawczeski, Nancy S. Ghanayem, J. William Gaynor, Jane W. Newburger, Victor Zak, Chitra Ravishankar, Lynn Mahony, Svetlana Khaikin, Victoria L. Pemberton, Richard V. Williams, David C. Bellinger

Publikováno v: Journal of the American College of Cardiology. 57(14)

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a4fa4fe35e4e8087b9a50eaf2e783c41