Zobrazeno 1 - 10
of 29
pro vyhledávání: '"Svenja Litzkendorf"'
Autor:
Svenja Litzkendorf, Martin Frank, Ana Babac, Daniel Rosenfeldt, Franziska Schauer, Tobias Hartz, J.-Matthias Graf von der Schulenburg
Publikováno v:
BMC Public Health, Vol 20, Iss 1, Pp 1-14 (2020)
Abstract Background Finding reliable information on one of more than 7000 rare diseases is a major challenge for those affected. Since rare diseases are defined only by the prevalence criterion, a multitude of heterogeneous diseases are included. Com
Externí odkaz:
https://doaj.org/article/20f799d1b02744f896a286975b6c5e8b
Autor:
Ana Babac, Verena von Friedrichs, Svenja Litzkendorf, Jan Zeidler, Kathrin Damm, J.-Matthias Graf von der Schulenburg
Publikováno v:
BMC Medical Informatics and Decision Making, Vol 19, Iss 1, Pp 1-17 (2019)
Abstract Background Many European countries have recently implemented national rare disease plans. Although the network is strengthening, especially on the macro and meso levels, patients still go a long way through healthcare systems, with many heal
Externí odkaz:
https://doaj.org/article/6b3ba6c61d6844ed9cedb654924d13e4
Autor:
Ana Babac, Martin Frank, Frédéric Pauer, Svenja Litzkendorf, Daniel Rosenfeldt, Verena Lührs, Lisa Biehl, Tobias Hartz, Holger Storf, Franziska Schauer, Thomas O. F. Wagner, J-Matthias Graf von der Schulenburg
Publikováno v:
BMC Health Services Research, Vol 18, Iss 1, Pp 1-14 (2018)
Abstract Background Rare diseases are, by definition, very serious and chronic diseases with a high negative impact on quality of life. Approximately 350 million people worldwide live with rare diseases. The resulting high disease burden triggers hea
Externí odkaz:
https://doaj.org/article/b75454208e5643aa8a23af54ee966039
Publikováno v:
Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz. 65:872-880
Zusammenfassung Hintergrund Um eine spezialisierte Versorgung von Menschen mit seltenen Erkrankungen (sE) zu gewährleisten, wurden zahlreiche Zentren für Seltene Erkrankungen (ZSE) gegründet. Für die ambulante Behandlung von Betroffenen in Kranke
Autor:
Svenja, Litzkendorf, Daniela, Eidt-Koch, Jan, Zeidler, Johann-Matthias, Graf von der Schulenburg
Publikováno v:
Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz. 65(9)
To ensure specialized care of patients with rare diseases, numerous centres for rare diseases were funded over the past few years. The reimbursement of patients' ambulatory care in hospitals, however, is characterized by a plurality of forms of care
Autor:
Isaac Aranda-Reneo, Luz María Peña-Longobardo, Eduardo F Tizzano, Julio López-Bastida, Juan Oliva-Moreno, Svenja Litzkendorf, Isabelle Durand-Zaleski
Publikováno v:
International Journal of Environmental Research and Public Health
Volume 17
Issue 23
International Journal of Environmental Research and Public Health, Vol 17, Iss 8989, p 8989 (2020)
Volume 17
Issue 23
International Journal of Environmental Research and Public Health, Vol 17, Iss 8989, p 8989 (2020)
Spinal muscular atrophy (SMA) is one of the most common severe hereditary diseases of infancy and early childhood. The progression of this illness causes a high degree of disability
hence, a significant burden is experienced by individuals with
hence, a significant burden is experienced by individuals with
Autor:
Eduardo F Tizzano, Svenja Litzkendorf, Juan Oliva-Moreno, Isaac Aranda-Reneo, Isabelle Durand-Zaleski, Luz María Peña-Longobardo, Julio López-Bastida
Publikováno v:
International Journal of Environmental Research and Public Health
International Journal of Environmental Research and Public Health, 2020, 17 (16), ⟨10.3390/ijerph17165640⟩
International Journal of Environmental Research and Public Health, MDPI, 2020, 17 (16), ⟨10.3390/ijerph17165640⟩
Volume 17
Issue 16
International Journal of Environmental Research and Public Health 17 (2020), Nr. 16
International Journal of Environmental Research and Public Health, Vol 17, Iss 5640, p 5640 (2020)
International Journal of Environmental Research and Public Health, 2020, 17 (16), ⟨10.3390/ijerph17165640⟩
International Journal of Environmental Research and Public Health, MDPI, 2020, 17 (16), ⟨10.3390/ijerph17165640⟩
Volume 17
Issue 16
International Journal of Environmental Research and Public Health 17 (2020), Nr. 16
International Journal of Environmental Research and Public Health, Vol 17, Iss 5640, p 5640 (2020)
Background: this study aimed to estimate the economic impact and health-related quality of life (HRQOL) of patients with spinal muscular atrophy (SMA) in three European countries. It was used a cross-sectional study carried out in France, Germany, an
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::80e8ea1fdb261eba036bbff09afc6091
https://hal.inrae.fr/hal-03343518/file/ERPH_Pena-Longobardo_2020.pdf
https://hal.inrae.fr/hal-03343518/file/ERPH_Pena-Longobardo_2020.pdf
Publikováno v:
Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen. 125:3-13
Zusammenfassung Ziel Infolge steigender Krankenkassenausgaben wachst die Notwendigkeit einer Priorisierungsdiskussion im deutschen Gesundheitswesen. Eine solche wurde in den vergangenen Jahren vermieden, sodass normative Vorgaben fehlen. Dies kann zu
Autor:
Svenja Litzkendorf, Holger Storf, Jan Zeidler, Jens Göbel, J.-Matthias Graf von der Schulenburg, Frédéric Pauer
Publikováno v:
Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz. 60:494-502
Ein zentrales Informationsportal uber seltene Erkrankungen wurde etabliert, uber das u. a. Betroffene und Angehorige auf hochwertige Informationen zugreifen konnen. Hierfur wurden Qualitatskriterien entwickelt, die speziell auf Seiten uber seltene Er
Autor:
Franziska Schauer, Ana Babac, Tobias Hartz, J.-Matthias Graf von der Schulenburg, Martin Frank, Svenja Litzkendorf, Daniel Rosenfeldt
Background: Finding reliable information on one of more than 7,000 rare diseases is a major challenge for those affected. Since rare diseases are defined only by the prevalence criterion, a multitude of heterogeneous diseases are included. Common to
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::697666f4004a145351f3ae0e402d5b3e
https://doi.org/10.21203/rs.2.13051/v1
https://doi.org/10.21203/rs.2.13051/v1